Worldwide Successful Pediatric Nurse-Led Models of Care

Preface
	References
Contents
Nurse-Led Models of Care for Infants, Children, Youth, and Families: Introduction and Overview
	Introduction
	Neonates, Infants, and Early Childhood
	Broad Range of Children, Youth and Young Adults
	Theory-Driven Approaches to Care
	Staff Initiative
	Conclusion
	References
The Social-Ecological Theory of Child Development: A Framework for Nurse-Led Initiatives and Models of Care
	Social-Ecological Theory
	A Need for Change
	Applying Social-Ecological Theory to Care
	Application to Practice, Training, and Research
	Conclusions
	References
Baby Steps: Improving the Transition from Hospital to Home for Neonatal Patients and Caregivers Through a Nurse-Led Telehealth Program
	Introduction
	Background Information
		Why Develop Baby Steps?
		Process to Develop the Baby Steps Service
		Theoretical Framework: Theory of Transition (Meleis)
		Description of Nurse-Led Baby Steps Model
			Organizational Components of Baby Steps Involve Several Interprofessional Teams
			Description of the Services Provided
			Role/Responsibilities of Team Members/Position Requirements of Those Involved with the Nurse-Led Model
			Methods of Evaluation
	Challenges and Facilitators
		Challenges
		Facilitators
		Financial Challenges and Opportunities
	Service Adjustments Made
	Lessons Learned
	Future Implications for Clinical Practice and Research
	Conclusion
	Useful Resources
	Appendix: Baby Steps Program Brochure
	References
Canadian Nurse Practitioner-Led Pediatric Rehabilitation Complex Care Program
	Introduction
	Background
		NP Scope of Practice in Ontario
		The Children’s Rehabilitation Hospital
		Population Description (Children with Medical Complexity)
	Nurse Practitioner-Led Model
		Model Development
		Gaps and Challenges with the Pre-existing Model of Care
		Description of the New Model of Care
		Collaboration with Physician Partners
		Collaboration with the Interprofessional Team
		Provincial Framework Complex Care for Kids Ontario (CCKO)
	Evaluation
	Challenges and Facilitators
		Challenges
		Facilitators
	Service Adjustments
		Improvements for Access to Care
	Lessons Learned
		Building Relationships
		Approach to Care of CMC
	Future Implications for Clinical Practice and Research
		NP as Most Responsible Provider (MRP)
		Transition to Adulthood for Complex Care Population
		Evaluation of Long-Term Impact
	Conclusion
	Useful Resources
	References
Leveraging a Professional Nursing Organization to Create an Antitrafficking Care Model
	Introduction
	Background
		Human Trafficking: A Public Health Threat
		Target Setting: Professional Nursing Organizations
		Impetus for Model Development
		Theoretical and Conceptual Frameworks
	The Alliance for Children in Trafficking
		Standard Setting for Education and Policy
		Replication Through the ACT Advocates Program
		Dissemination Through Contributions to Scientific Literature
		Evaluation
	Challenges and Facilitators
		Challenges
		Facilitators
		Financial Support and Sustaining Strategies
	Service Adjustments
		National Workgroup Development
	Lessons Learned
		Health Equity
		Global Health Perspective
		Importance of Partnerships
		Calls to Action
	Future Implications for Clinical Practice and Research
		Suicide Prevention and Foster Care
	Conclusion
		The Role of Professional Nursing Organizations
	Useful Resources
	References
Evolution of a Complex and Home Care Program for Children with Chronic Diseases
	Introduction
	Background
	Target Population and Setting
	Process Undertaken to Implement This Model
		Workload Projection
		Budget Planning
		Home Medical Equipment and Consumables
		Caregiver Training
		Care Plans
		Postdischarge Care
	Theoretical Framework
		Shared Care
		Team-Based Care
		Joint Accountability
		Electronic Care Plans
	Organizational Component
	Service Components of CCHS
		Caregiver Training and Assessment
		Medical, Psychosocial and Financial Assessment
		Home Environment Assessment
		Equipment and Consumables Assessment and Procurement
		Care Planning and Coordination
		Outpatient Clinics
		Home Visits
	Roles of the CCHS Home Care Nurse
		Patient Assessment
		Caregiver Training and Assessment
		Medical Equipment Procurement and Consumable Supply
		Discharge Planning
		Home Visits and Tele-Consultations
		Training and Collaboration with Health-Care Providers
		Liaison with Medical Equipment Vendors
	Recruitment of Home Care Nurses
	Methods of Evaluation
	Challenges
		Lack of Community Facilities for Long-Term and Respite Care
		Responsible Care of Medical Equipment
		Funding
		Caregiver’s Psychological and Physical Health
	Facilitators
		Collaboration
		Philanthropic Funding
		Caregiver Support Programs (Psychosocial Counselling and Respite Care)
	Service Adjustments Made
		Medical Equipment Procurement and Maintenance
		Funding
		Transition to Adult Care
	Lessons Learnt
	Future Implications for Clinical Practice and Research
	Conclusion
	References
Affirming and Empowering Kids: Creating an Independent and Comprehensive Gender-Affirming Health-Care Center
	An Introduction to Transhealth
	Background
		Transgender and Gender-Diverse Kids Are Resilient and Deserve More
		Transhealth Was Developed to Respond to Community Need
	Description of the Nurse-Led Transhealth Model
	Challenges and Facilitators
	Service Adjustments Made
	Lessons Learned
	Future Implications
	Conclusions
	Useful Resources
	References
Caring for Patient on Extracorporeal Membrane Oxygenation (ECMO) in the Pediatric Intensive Care Setting
	Introduction
	Background
	Process Undertaken to Implement the Model
		Acquiring ECMO Knowledge and Skills from Established ECMO Centers
		KKH Pediatric-Neonatal ECMO Committee
		Working with Stakeholders
		Recruitment and Training of ECMO Specialist Nurses
	Theoretical Framework
	Organizational Component
	Service Components
		ECMO Initiation
		ECMO Maintenance
		Post-ECMO Management
	Roles of the Nurses
		ECMO Nurse Coordinator
		ECMO Specialist Nurse
		Bedside Nurse
		Multidisciplinary Team
	Training for ECMO Specialist Nurses
	Methods of Evaluation
	Challenges and Facilitators
		Address Financing/Reimbursement
	Service Adjustments Made
	Lessons Learned
	Future Implications
	Conclusion
	References
Transitioning from Pediatric to Adult Care in Sickle Cell Disease: An Innovative Nurse-Led Model
	Introduction
	Background
	Process
	Theoretical Framework
	Nurse-Led Module Description
	Methods of Evaluation
	Challenges and Facilitators
	Service Adjustments Made
	Lessons Learned
	Future Implications for Clinical Practice and Research
	Conclusion
	Useful Resources/Websites
	References
The Sierra Leone National ETAT+ Programme: Delivering Nurse-Led Emergency Paediatric Care
	Introduction
	Background
		Need for the Model and the Target Population
		Impetus for the Development of This Model
		The Process Undertaken to Develop and Implement the Model
		Theoretical Framework
	Description
		Organizational Components
		Services
		Team Members
		Evaluation
	Challenges and Facilitators
		Challenges
		Facilitators
	Lessons Learned
	Future Implications for Clinical Practice and Research
	Conclusion
	Useful Resources
	References
Interactional Model of Caring for Families of Children with Chronic Conditions
	Introduction
	Background
	Description of the Nurse-Led Model
		Theoretical Foundations of the Model
		The Interactional Family Care Model (IFCM) Dimensions
		IFCM Assumptions
		IFCM Practice
	IFCM Service Components
		The Family Assessment Process
		Interventions with the Family
		Strategies for Intervening with the Family
		IFCM Outcomes
		IFCM Team Members
	Challenges and Facilitators
	Lessons Learned
	Service Adjustments Made
	Future Implications for Clinical Practice and Research
	Conclusion
	Useful Resources
	References
From Patient Studies to a Hospital-Wide Initiative: A Mindfulness Journey
	Introduction
	Background
	Theoretical Model and Conceptual Framework
		Organizational Components
		Service Components
		Intervention
		Team Members
		Methods of Evaluation
		IRB and Ethical Approval Process
		Challenges
	Facilitators
		Service Adjustments Made
		Lessons Learned
		Future Implications
	Conclusion
	Useful Resources
	References
Nurse-Led Service Models: Lessons Learned Over 25 Years
	Overview of Past and Ongoing Nurse-Led Healthcare Transition Models of Care
	Early Beginnings
	Movin’ On Up
	Future Development in Intellectual Disabilities and Developmental Disabilities
	Lessons Learned
	Conclusion
	References
A Paediatric Eczema Shared Care Model
	Introduction
	Background
		Overview of the Need for an Eczema Model/Target Population/Setting
		Impetus for Development of the Eczema Model
		The Process Undertaken to Develop and Implement the Eczema Model
		Laying the Groundwork for the Eczema Model
		Collaboration Efforts Involved with Eczema Model Planning
		Collaboration, Training and Resource Development
			Eczema Resources for Health Professionals and Consumers
			Community Webinars and Seminars
			Eczema School Kit
			Primary Care Decision-Making Algorithm and GP Management Plan
		Theoretical Framework
	Components of the Shared Care Model for Allergic Diseases
	Collaborative Pharmacy Eczema Model of Care
	Description of the Nurse-Led Model
		Organisational Components
		Components of the Service Model
		Position Requirements of Those Involved with the NP-Led Model
		Methods of Evaluation
	Challenges and Facilitators
		Challenges
		Facilitators
		Address Financing/Reimbursement
	Service Adjustments Made
	Lessons Learned
	Future Implications for Clinical Practice and Research
	Conclusion
	Useful Resources
	Appendix 1: Eczema Decision-Making Algorithm
	Appendix 2: GP Management Plan
	Appendix 3: Advisory Group Members
		Collaborative Pharmacy Eczema Model of Care Expert Advisory Group (Alphabetical by Surname)
		Multidisciplinary Expert Advisory Group (Alphabetical by Surname)
	References
Breatheasy: A Nurse-Led ‘Care Through Family’ Service Model
	Introduction
	Background Information
		Infant and Child Mortality and Morbidity Shifts
		Children with a Tracheostomy
		Care in Lower-Resourced Settings
		The Contextual Lens
		A Solution-Focused Lens
		Researching Clinical Practice
	Description of the Breatheasy Programme
		The Service Model
		Staffing
		Inter- and Multidisciplinary Teamwork
		Preserving the Mother–Child Pair
		Enabling Continuous Presence
		Belief and Trust
		Psychological Support and Empathy
		Mothers as a Capable Resource
		Sharing Knowledge
	Factors That Support Care Through Family
		Daily Changing of the Tracheostomy Tube
		Resources and Inputs
		A Competent Team of Caregivers
		A Safe Place
	Challenges and Service Adjustments Made
		Challenges
		Service Adjustments
	Lessons Learned
		The Care Through Family Self-Assessment Tool
	Future Implications for Clinical Practice and Research
	Conclusion
	Useful Resources
	Appendix
	References
Leading a Nurse Practitioner-Designed Newborn Circumcision Clinic
	Introduction
	Background Information
		NCC Needs Assessment
		Target Population and Setting
		Designing and Implementing the NCC
		Theoretical Framework
	Description of the NCC
		Organizational Components
		Services Components of the Service Model
		Description of the Services Provided
		Setting of the Model/Wherein Services Provided
		Team Member’s Roles and Responsibilities
		Methods of Evaluation
	Challenges and Opportunities
	Family Feedback Guides Service Delivery Adjustments
	Lessons Learned
	Future Implications for Clinical Practice and Research
	Conclusion
	Useful Resources
	References
Analysis of Nurse-Led Models Heath Care and Implications for Practice, Research, Education, and Policymaking
	Introduction
	Responsive to Healthcare Needs
	Theoretical Frameworks
	Sustainability
	Research and Quality Improvement Efforts
	Evaluation Measures
	Conclusions
	References