Through the valley of shadows: living wills, intensive care, and making medicine human

Table of Contents 
 Acknowledgments 
 Introduction 
 SECTION ONE: PAST 
 Chapter 1. A Culture in Crisis 
 Historical Death Culture and the Dying of Death 
 Life Support and the Miracles of Resuscitation 
 The Rise of Intensive Care and <
"Life Support>
" 
 Life in the 1960s 
 Chapter 2. The Rise of the Living Will 
 The Findings of the Court 
 Legislation 
 Disclosurism and a Focus on Procedures 
 Improving enforcement 
 Futility, Financial Disaster, and Obligations to Society 
 Expanding horizons 
 Chapter 3: Empirical and Ethical Problems with Living Wills 
 Conceptual Problems with Living Wills 
 Pig Iron under Water: Living Wills Don't Apply in Real Life 
 Paradoxical Threats to Autonomy 
 <
"If I'm ever like that, let me die>
": Disability Stigma 
 The Limits of Prediction Make Living Wills Difficult to Use 
 Problems of race 
 Living Wills Can Backfire 
 Empirical evidence that Living Wills Don't Work 
 SECTION TWO: PRESENT 
 Chapter 4. Living Wills Don't Make Decisions
 Human Beings Do 
 Thinking like a Human Being 
 What your Brain Doesn't Know Might Kill You 
 Affective forecasting and psychological adaptation 
 Things that Go Bump in the Night 
 Moral Distress 
 Moral Hazards 
 Choosing to See 
 Chapter 5. The Barbaric Life of the ICU 
 Barbarism and Brutality 
 The Experience of the Ventilator 
 Immobilization 
 Tubes and more tubes 
 The Brain under Siege 
 Terrible Communication 
 We Don't Always Know What We Want 
 Deforming Death in the Rush to Rescue 
 Chapter 6. Life after the ICU 
 A Few Visionary Researchers 
 The Post-Intensive Care Syndrome 
 Bodies 
 Muscles 
 Lungs 
 Brains 
 Psyches 
 Is It All Worth It? 
 The Tension between Outcomes Research and Advance Directives 
 SECTION THREE: FUTURE 
 Chapter 7. Reform: The Current State of the Art 
 Eliciting Values and Wishes 
 Registration Drives for Advance Directives in Wisconsin 
 Multimedia Persuasion 
 Tailoring Advance Care Planning 
 Decision Aids 
 Choice Architecture 
 The Science of Communication 
 The Conversation Project 
 Redesigning the ICU 
 Chapter 8. Healing the Intensive Care Unit 
 Let Families In 
 Fixing Code Status 
 Hope for the Best, Prepare for the Worst 
 Wrapping Up 
 Recognize the Crossroads 
 Create a Support Community 
 Create Space for Facilitated Farewells 
 Change the Framing to Manage Clinicians' Moral Distress 
 Changing Culture outside Medicine 
 Not Left Unsaid 
 Authentic Personalization 
 A Possible Map: Five Approaches to the ICU 
 Approach 1: Do Everything 
 Approach 2: Be Aggressive Only if I Have a Reasonable Chance of Recovery 
 Approach 3: Only Admit Me to the ICU if I Have an Excellent Chance of Recovery 
 Approach 4: Don't Admit Me to the ICU 
 Approach 5: Don't Admit Me to a Hospital
 Focus Only on My Comfort 
 Epilogue. What Should We Do in the Meanwhile?