The Official Parent's Sourcebook on Kearns-Sayre Syndrome: A Revised and Updated Directory for the Internet Age

Overview......Page 10
Scope......Page 12
Moving Forward......Page 13
PART I: THE ESSENTIALS......Page 16
Overview......Page 18
What Is Kearns-Sayre Syndrome?......Page 19
For More Information......Page 20
More Guideline Sources......Page 21
Vocabulary Builder......Page 23
Associations and Kearns-Sayre Syndrome......Page 26
Finding More Associations......Page 30
Finding Doctors......Page 32
Selecting Your Doctor......Page 33
Working with Your Child's Doctor......Page 34
Vocabulary Builder......Page 35
PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL......Page 36
Federally-Funded Research on Kearns-Sayre Syndrome......Page 38
The National Library of Medicine: PubMed......Page 43
Vocabulary Builder......Page 44
PART III. APPENDICES......Page 48
Overview......Page 50
Your Child's Medications: The Basics......Page 51
Learning More about Your Child's Medications......Page 52
Commercial Databases......Page 53
Contraindications and Interactions (Hidden Dangers)......Page 54
A Final Warning......Page 55
General References......Page 56
Overview......Page 58
Food and Nutrition: General Principles......Page 59
Finding Studies on Kearns-Sayre Syndrome......Page 63
Additional Web Resources......Page 65
Vocabulary Builder......Page 66
Preparation......Page 68
Medical Libraries Open to the Public......Page 69
Your Child's Rights as a Patient......Page 76
Parent Responsibilities......Page 80
Choosing an Insurance Plan......Page 81
NORD's Medication Assistance Programs......Page 83
Additional Resources......Page 84
Vocabulary Builder......Page 85
ONLINE GLOSSARIES......Page 88
Online Dictionary Directories......Page 89
KEARNS-SAYRE SYNDROME GLOSSARY......Page 90
General Dictionaries and Glossaries......Page 96
INDEX......Page 98