Routledge Handbook of Disability Studies

Cover
Half Title
Title Page
Copyright Page
Dedication
Table of Contents
List of illustrations
List of contributors
PART I: Theorising disability
	1. Disability studies: Into the multidisciplinary future
		Structure of the book
		Part 1: Theorising disability
		Part 2: disablement, disablism, and impairment effects
		Part 3: social policy and disability: health, personal assistance, employment, and education
		Part 4: disability studies and interdisciplinarity
		Part 5: contextualising the disability experience
		References
	2. Understanding the social model of disability: Past, present and future
		Introduction
		The origins of the social model
		The arrival and impact of the social model
		The social model and its discontents
		Final word
		References
	3. Critical disability studies: Rethinking the conventions for the age of postmodernity
		Notes
		References
	4. Minority model: From liberal to neoliberal futures of disability
		Introduction: from liberal to neoliberal futures of disability
		The micro-technologies of normalisation
		Incapacity: the new social standard
		Ablenationalism: model minority normativities
		Conclusion: something other than becoming in order to be fixed
		References
	5. The ICF and its relationship to disability studies
		Introduction
		Disability definitions, models and classifications
		WHO, health professionals and the ICF
		ICF classifications
		ICF conceptualisation
		The ICF and the CRPD
		The ICF and disability studies
		Notes
		References
	6. Disability and human rights
		Human rights prior to the disability Convention
		The UN Convention on the Rights of Persons with Disabilities
		Key themes from the CRPD
		Paradoxes of rights
		Note
		References
	7. Invalidating emotions in the non-disabled imaginary: Fear, pity and disgust
		Introduction
		Fear
		Pity
		Disgust
		Conclusion
		References
	8. Psycho-emotional disablism: The missing link?
		Introduction
		Psycho-emotional disablism
		Direct psycho-emotional disablism
		Indirect psycho-emotional disablism
		Phenomenology and the dys-appearing body
		The ‘dys-appearing’ body: embodied disablism and/or sociology
of impairment?
		Internalised oppression unpacked
		(Re)producing the disabled subject
		(Re)producing the ‘normal’ subject
		The role of impairment in experiences of psycho-emotional disablism
		Conclusion
		References
	9. The biopolitics of disability and animality in Harriet McBryde Johnson
		Introduction
		Humans and other animals
		Coalition building and advocacy
		Essentialism and valuation hierarchies
		Notes
		References
	10. Agency, structure and emancipatory research: Researching disablement and impairment
		Introduction
		Background: researching disability
		Emancipatory research
		Participatory research
		Some problems with disability research
		Change, development and improvement
		Agency-structure problem
		Critical realism: an alternative approach to disability research
		Note
		References
PART II: Disablement, disablism and impairment effects
	11. Deaf identities in disability studies
		The contested idea of disability identity
		Deafness and why a D/deaf identity might be special
		The deaf community: boundaries and diversity
		Technology and D/deaf identity
		Deaf and/or disabled?
		Reproductive technologies and deaf identity
		The ethical importance of self-definition
		Concluding comments
		Notes
		References
	12. Theorising the position of people with learning difficulties within disability studies: Progress and pitfalls
		Introduction
		How far and in what ways does the social model account for the experiences of people with learning difficulties?
		Who should theorise about ‘learning disability’ – and how?
		Impairment: the contested issue
		Summary and conclusions
		Future directions of travel
		Notes
		Acknowledgements
		References
	13. Long-term disabling conditions and disability theory
		Introduction
		The sociology of long-term disabling conditions (chronic illness)
		The interactionist approach
		Key themes within a sociological understanding of chronic illness
		Uncertain and unpredictable futures
		Impact on social relations
		Assaults on self-image and self esteem
		Locating chronc illness in disability studies
		Challenging questions
		Empowerment, diabetes and the medicalisation and state sponsorship of
‘anti-oppression’ measures
		Batten disease and the primacy of the biological
		Future directions and collaborations
		References
	14. Critical realism as the fourth ‘wave’: Deepening and broadening social perspectives on mental distress
		Introduction
		Why and how social research explores mental distress
		The development and impact of survivor-led research
		The fourth ‘wave’: critical realism
		Section summary
		Using critical realism to enhance primary research in mental distress: an
empirical example
		Conclusion: next steps for critical realism, mental distress and disability studies
		Acknowledgements
		References
	15. It’s about time!: Understanding the experience of speech impairment
		Time and the social model of disability: a critique
		Speech impairment and communicative capital
		Conclusion
		References
	16. Blindness/sightedness: Disability studies and the defiance of di-vision
		Introduction
		Di-visions in knowledge
		Disability studies and vision impairment
		The moral explanation
		The medical/individual/psychological explanation
		The social and learned explanation
		Critical explanations
		We all come to know blindness and sightedness
		Languaging blindness
		Emphasising relationality
		Conclusion
		References
PART III: Social policy and disability: Health, personal assistance, employment and education
	17. Social suffering in the neoliberal age: Surplusisty and the partially disabled subject
		Introduction
		Neoliberalism and its reimagining of disability
		Partiality and the affective politics of neoliberal invalidation
		Partiality and neoliberal classificatory assessment regimes
		Contesting partiality and stigmatisation
		Conclusion
		Acknowledgements
		References
	18. Disabled people and employment: A UK perspective
		Introduction
		Disabled people in the labour market
		Tackling employment exclusion
		Where are we now?
		The future of work
		References
	19. Disability studies, inclusive education and exclusion
		The worst of times
		Special education and the progress of collective indifference
		Bestowed understandings
		Professional knowledge and interest
		Education reform and disability studies in education
		Establishing authenticity
		Educating teachers
		Building community
		Conclusion
		Notes
		Bibliography
	20. Independent living and the failure of governments
		Introduction
		Activism and independent living: the emergence of an agenda for change
		Independent living by the back door?: Facilitating support through
social security and the rise and fall of the Independent Living Fund
		Anti-social benefits: the shift from the Disability Living Allowance to the Personal Independence Payment
		Universal Credit
		Care markets and carving out routes to independence
		Cash for care: independent living in the era of direct payments and the personalisation of social care
		Isolation and independent living: taking the social out of social care
		Discussion and concluding comments
		References
	21. Diagnosis as social practice and the possibility of interruption
		Introduction
		Developing a diagnostic construct
		Diagnosis as social process
		Diagnosis as political product
		Interrupting diagnosis
		References
	22. Boundary maintenance: Exploring the intersections of disability and migration
		Introduction
		A mobile world: migration in the twenty-first century
		Citizens of the world? Exploring intersections of disability, race and migration
		No entry: disability and immigration policy
		Gaining entry, but no access? Realising and practising rights
		Concluding comments
		Acknowledgement
		References
	23. Disability in developing countries
		Introduction
		Disability from the global to the local
		Barriers to participation
		Ways forward
		Conclusion
		References
PART IV: Disability studies and interdisciplinarity
	24. The metanarrative of disability: Social encounters, cultural representation and critical avoidance
		The emergence of cultural disability studies
		Does the study of culture deepen our understanding of disability?
		Does the study of disability enrich our understanding of culture?
		Conclusion
		References
	25. What can philosophy tell us about disability?
		Introduction: what can we tell you about philosophy and its uses in understanding disability?
		Philosophical ontology and disability theory
		Philosophical ethics and the moral significance of disability
		Political philosophy and disability policy
		Conclusion: the value of philosophy for disability
		References
	26. The psychology of disability
		Introduction
		A functionalist psychology of disability: mainstream psychological disability studies
		Study 1: abstract
		A phenomenological psychology of disability: critical psychological disability studies
		Study 2
		Conclusion
		References
	27. Challenging the impairment/disability divide: Disability history and the social model of disability
		The social creation of impairment
		Lest we become historians of medicine: the challenges of challenging the impairment/disability divide
		Conclusion
		References
	28. Disability, sport and physical activity
		Disability sport
		Disability and physical activity
		Possible directions of travel
		References
		Weblinks
	29. We have never been able-bodied: Thoughts on dis/ability and subjectivity from science and technology studies
		From determinist essentialism through social constructivism to post-modernity
		From the individual to relations
		Embodied technologies or technologised bodies?
		Do assistive technologies have politics?
		Disability, biopolitics and the state
		Dis/abling borders or the apheresis of the subject
		A final word
		Notes
		References
PART V: Contextualising the disability experience
	30. Feminism and disability: A cartography of multiplicity
		Introduction
		Early contributions and debates
		Key concepts and debates in feminist disability studies
		Diverse bodies of knowledge
		Possibilities and challenges
		Conclusion
		References
	31. Disability and sexuality
		Introduction
		A note on theory
		Background
		Research thus far
		Challenging questions
		Future directions
		Attention to enabling environments and structural barriers
		Conclusion
		References
	32. Race/ethnicity and disability studies: Towards an explicitly intersectional approach
		Where have we been on race/ethnicity and disability?
		Culture, disability and service provision
		Multiple and intersecting identities result in multiple and intersecting oppressions
		Responding to multiple, intersecting oppressions
		Notes
		Bibliography
	33. Mothering and disability: From eugenics to newgenics
		The underlying issues: disability, mothering, eugenics and newgenics
		The underlying issues: gender, structure and disablism
		Challenges: policies and programming for disabled mothers
		Erasing and undermining motherhood in disability research and policy
		Future considerations: bringing mothers in
		References
	34. Understanding disabled families: Replacing tales of burden and resilience with ties of interdependency
		Introduction
		Disability as a burden and resilient families
		The search for cure or therapy
		Care and interdependency
		Conclusion
		References
		Weblinks
	35. ‘I hope he dies before me’: Unravelling the debates about ageing and people with intellectual disability
		Middle-aged – or prematurely old?
		Possibilities of middle age
		Old age – double jeopardy
		Reformulating old age
		Adapting services to age-associated change
		Ageing place in group homes: an exemplar issue
		Concluding comments
		References
Index