Management of Prader-Willi Syndrome: Under the Sponsorship of The Prader-Willi Syndrome Association

Front Matter....Pages i-xix
Front Matter....Pages 1-2
Overview....Pages 3-14
Differential Diagnosis in Prader-Willi Syndrome....Pages 15-22
Hypogonadism and Osteoporosis....Pages 23-33
Genetics Evaluation and Counseling for Prader-Willi Syndrome....Pages 34-38
Front Matter....Pages 1-2
A Case Study: A Chronology of Hope....Pages 41-51
A Team Approach to Case Management....Pages 52-54
Medical and Nursing Interventions....Pages 55-67
Front Matter....Pages 69-69
Dental Manifestations and Management....Pages 71-75
Nutritional Management....Pages 76-98
Psychological and Behavioral Management....Pages 99-112
Education of the Child with Prader-Willi Syndrome....Pages 113-123
Speech and Language Development....Pages 124-133
Physical and Occupational Therapy for Prader-Willi Syndrome....Pages 134-141
Vocational Concepts in Prader-Willi Syndrome....Pages 142-153
The Role of the Social Worker....Pages 154-161
Front Matter....Pages 163-163
Social Skills Training for Prader-Willi Syndrome....Pages 165-170
Understanding Psychosexuality....Pages 171-181
A Parent’s Point of View....Pages 182-194
Front Matter....Pages 195-195
Advocacy and Change: A Primer for Parents....Pages 197-204
Residential Programs for Individuals with Prader-Willi Syndrome....Pages 205-222
Front Matter....Pages 195-195
A National Parent Network: The Prader-Willi Syndrome Association....Pages 223-230
Back Matter....Pages 231-310