Evidence-informed Approaches for Managing Dementia Transitions: Riding the Waves

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EVIDENCE-INFORMED APPROACHES FOR MANAGING DEMENTIA TRANSITIONS: Riding the Waves
Copyright
Contributors
Foreword
Acknowledgments
1 - Improving the lived experience of dementia transitions
	Understanding determinants of transition quality for people with dementia
	What does ``good\'\' mean in the context of transitions and dementia
		Hope
		Expectancy
		Trust
		Optimism
		Self-efficacy
		Locus of control
	Conclusion
	References
2 - ``It is not a disease, only memory loss\'\': exploring the complexity of access to a diagnosis of dementia in a cross-cultura ...
	Introduction
	``Pathways to Diagnosis\'\' study
		Data collection
		Theoretical frameworks: candidacy for care and intersectionality
	Initial problem identification and the peridiagnostic period
		Dimensions of candidacy
			Identification
			Navigation
			Appearances and adjudications
			Offers and resistance
			Permeability of services
	Discussion
	Conclusions
	References
	Further reading
3 - Driving cessation in people with dementia
	Introduction
	Medical conditions and driving
	Driving and dementia
	Determining medical ``fitness to drive\'\'
		National guidelines/standards
		Medical fitness to drive legislation
		Voluntary reporting of medically unfit drivers
	Driving and dementia
		Identification and assessment of ``fitness to drive\'\' in people with dementia
		Physician discussions related to ``fitness to drive\'\' in dementia
	Dementia and driving cessation
		Factors associated with driving cessation in persons with dementia-intrapersonal, interpersonal, and environmental
		Stages of driving cessation
		Supporting the person with dementia and family through the loss of driving privileges
		Lived experiences in transitioning from driver to non-driver
		Driving cessation support groups
	Enhancing mobility after driving cessation in persons with dementia
	Conclusion
	References
4  - Transitions in financial autonomy and risk for financial elder abuse
	Case example
	Overview of financial ability and aging
	Protecting one\'s finances: intergenerational communication and conflict
	The combination of high privacy rules and cognitive and psychological vulnerabilities make older adults vulnerable
	Older adult vulnerability to financial exploitation
	Enhancing communication between adult children and older parents around finances
	Cognitive impairment and financial decision-making in older adults
	Financial ability and dementia
	Loss of financial autonomy during dementia: findings from qualitative research
	Signs, challenges, and strategies
	Conclusion
	References
5 - Hospitalization of persons with dementia
	Prevalence of dementia in hospitalized patients
	Reasons for hospitalization
	Risks for persons with dementia in hospital
		Institutional factors
		Personal factors
			Medical status
			Cognitive status
			Functional status
		Care partners
	Strategies for optimizing care of persons with dementia in hospitals
		Comprehensive geriatric assessments
		Senior-friendly hospitals/care
		Acute care of the elderly unit
		48/5 pathway
		Move on
		Behavioral support teams
		Family-centered function focused care
		Rehabilitation care model for older adults with cognitive impairment
	Approaches to care of older adults with dementia
		Preventing hospitalizations
		Building research evidence
	Conclusions
	References
6 - Change in informal support: creating a caregiving system
	Introduction
	Methods
	Living with a parent with dementia: family resilience
		Quantitative results
		Qualitative results
	The impact of a stressor event: taking care of a parent with dementia
		Physical and psychological burden
		Financial burden
		Social burden
	What is resilience?
	Family belief systems
		Making meaning of adversity
		Optimism
		Spiritual support
	Family organizational patterns
		Flexibility
		Family cohesion and connectedness
		Social support
			Informal support
			Community support
			Professional support
		Economic resources
	Communication and problem-solving processes
	Culture
	Conclusion
	References
7 - Transitioning from home in the community to an assisted living residence
	Introduction
	What is assisted living and who lives there?
	What do we mean by transition to an assisted living residence?
	Deciding to move
	Moving
		Preparing for the move
		Tasks and responsibilities for moving
	Settling in
	Recreating home
	Practices and policies that support the transition to an assisted living residence
	Conclusion
	References
8 - Relocation to a long-term care home
	Introduction
	What is the transition from home care to long-term care?
	Factors that precipitate the transition to long-term care
	Factors that influence the experience of a person with dementia with the transition to long-term care
	Factors that influence the experience of the transition into long-term care by caregivers
	The importance of longitudinal studies
		Study one
		Study two
		The need for further longitudinal research
	Conclusion
	References
9 - A palliative approach to care: from diagnosis to end-of-life
	Acknowledging the terminal nature of dementia
	Adopting a palliative approach to care for people with dementia
	Importance of decision-making and advance care planning
		Treatment preferences
		Considering implications for treatment preferences-place of care
	Family care and involvement
		Caring in the community
		Care partners and decision-making at end of life
		The bereaved family care partner
	Optimal assessment and treatment of symptoms
		Pain
		Symptom burden
	Beyond physical care psychosocial and spiritual support
	Transition to end-of-life and palliative care-final considerations
	References
10 - Steering through the waves and adjusting to transitions in dementia
	Introduction
	Recognition
	Expectations
	Autonomy
	Dementia-friendly environments
	Judicious changes
	Understanding and creating new aspects of self
	Savor
	Team of helpers
	Conclusion
	Where next?
	References
Index
	A
	B
	C
	D
	E
	F
	G
	H
	I
	J
	K
	L
	M
	N
	O
	P
	R
	S
	T
	V
	W
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