Disability Justice in Public Health Emergencies

Cover
Half Title
Title Page
Copyright Page
Table of Contents
List of Contributors
Why Only Disability Justice Can Prepare Us for the Next Public Health Emergency
	Disability Justice
	Overview of Contributions
	Notes
	Works Cited
Part I: Crisis in the Clinic
	Chapter 1: Disability Rights and Disability Justice as Gestalt Shifts for Triage Decision-Making in a Pandemic
		Backdrop of Ableism
		Disability Rights and Disability Justice as Distinct Frameworks
		Avoiding Disability Discrimination in Formal Triage Protocols
		Informal Triage and Disability Justice
		Recommendations
		Acknowledgments
		Notes
		Works Cited
	Chapter 2: Incorporating Social Determinants of Health into Crisis Standards of Care
		Ableism, Racism, and the Social Determinants of Health
		Ableism and Racism in Healthcare and Crisis Standards of Care
		Disability, Race, and Ethical Issues in Developing Crisis Standards of Care
			Including Disability Rights Advocates in the Development of CSC
			Rejecting Categorical Exclusions
			Omitting Quality of Life Considerations
			Rejecting Scores for Long-Term Survival
			Equity Problems with Determining Short-Term Survival
			Balancing Ethical Principles to Make CSC More Equitable
			Keeping Home Ventilators with their Owners
			Triage Teams
		Conclusion
		Note
		Work Cited
	Chapter 3: Tragic Choices: Disability, Triage, and Equity Amidst a Global Pandemic
		Acknowledgments
		Notes
		Work Cited
Part II: Multiply Marginalized
	Chapter 4: “We Are a Compromise”: A Social Security Model of Disability During COVID-19
		Introduction
		Background
		Methods
		Framework
		Findings
			Worsening Poverty
			Social Safety Net Disruptions
			Informal Survival Strategies Upended
			Increased Employment Discrimination
			Improvements
		Discussion
		Conclusion
		Acknowledgments
		Notes
		Works Cited
	Chapter 5: Chronic Injustice: Racialized Disablement and the Urgency of the Everyday
		The Sociopolitical Production of Disability
		Injustice as Chronic: Emergency, Normalcy, and Who Matters
		Racialized Disablement: Racism, Ableism, and the Pandemic
			The Ableism and Racism Structuring the Pandemic
			Racialized Disablement as Conceptual Tool
		Conclusion
		Notes
		Work Cited
	Chapter 6: Long COVID and Disability: Navigating the Future
		Disability
		Recognition
		Futures
		Note
		Works Cited
	Chapter 7: Patient-Centered Communication and Resource Allocation for Non-Speaking People During Crises
		Work Cited
Part III: Before the Next Pandemic
	Chapter 8: Long COVID and Disability Justice: Critiquing the Present, Forming the Future
		Temporalities of Pandemic Harm: Complicating Before and After Narratives
		Long COVID as a Mass Disabling Event
		Long COVID and Disability Justice in and Beyond Emergency Conditions
			Critiquing Present Failures
			Envisioning Possible Futures
		In Conclusion: Disability Justice Beyond “Normal”
		Notes
		Work Cited
	Chapter 9: Not Everything is a Pandemic: The Challenge of Disability Justice
		A Contagious Term
			Sexual Violence
			Anti-Asian Racism
			Anti-Black Racism
			Colonialism
			Economic Disparity
			Anti-Trans Violence
			Ableism
		Making Sense, Not Making Sense
		A Disability Justice Challenge
		Notes
		Work Cited
	Chapter 10: Education as Bioethics: Oppression and Pandemic Public Education
		Introduction
		Special Education and the Start of the Pandemic
		Oppressive Educational Pressures During the Pandemic
		Conclusion
		Notes
		Works Cited
	Chapter 11: Building Institutional Trustworthiness in Emergency Conditions: Lessons from Disability Scholarship and Activism
		The Ethics of Trust and Trustworthiness
		Institutional Failures of Trustworthiness During COVID-19
		Recommendations for Building Institutional Trustworthiness
		Conclusion
		Notes
		Work Cited
Index