Contemporary Issues in Intellectual Disabilities (Disability Studies)

CONTEMPORARY ISSUES  IN INTELLECTUAL DISABILITIES......Page 4
CONTENTS......Page 8
PREFACE......Page 16
EDITOR’S CONTACT INFORMATION......Page 18
PART I. MENTAL HEALTH......Page 20
INTRODUCTION......Page 22
METHODOLOGY......Page 23
REFERENCES......Page 24
DIAGNOSTIC CRITERIA AND MI-ID......Page 26
DIAGNOSTIC CONUNDRUMS AMONG CHILDREN WITH MI-ID......Page 27
DM-ID AND CHILDREN......Page 28
CONCLUSION......Page 29
REFERENCES......Page 30
INTRODUCTION......Page 34
CONCLUSION......Page 35
REFERENCES......Page 36
INTRODUCTION......Page 38
METHODOLOGY......Page 39
Analysis of Data Obtained From Discharge Summaries (1997 - 2007)......Page 41
DISCUSSION......Page 43
REFERENCES......Page 44
INTRODUCTION......Page 46
FINDINGS......Page 47
DISCUSSION......Page 48
REFERENCES......Page 49
WOMEN WITHOUT INTELLECTUAL DISABILITY AND PSYCHIATRIC DISORDERS......Page 52
WOMEN WITH INTELLECTUAL DISABILITY  AND PSYCHIATRIC DISORDERS......Page 53
ACKNOWLEDGMENTS......Page 55
REFERENCES......Page 56
INTRODUCTION......Page 58
FINDINGS......Page 59
DISCUSSION......Page 60
REFERENCES......Page 61
FORENSIC PSYCHOTHERAPY AND LINKS WITH INTELLECTUAL DISABILITIES......Page 62
PATIENT HISTORY......Page 63
FORENSIC HISTORY......Page 64
DISCUSSION......Page 65
FORMULATION......Page 69
REFERENCES......Page 70
PART II. AGING AND LIFESPAN......Page 72
INTRODUCTION......Page 74
 LIFE EVENTS EXPOSURE IN ADULTS WITH DOWN SYNDROME......Page 75
THE EFFECTS OF MULTIPLE LIFE EVENTS OVER TIME......Page 76
AGE AND THE EFFECTS OF SOCIAL AND ENVIRONMENTAL EVENTS......Page 77
CONCLUSION......Page 78
REFERENCES......Page 79
BACKGROUND TO THE STUDY......Page 82
Language......Page 83
Self-Help......Page 84
REFERENCES......Page 85
INTRODUCTION......Page 88
METHODOLOGY......Page 89
RESULTS......Page 90
REFERENCES......Page 91
INTRODUCTION......Page 94
UNDERSTANDING DEATH......Page 95
SUPPORT......Page 96
CONCLUSION......Page 97
REFERENCES......Page 98
INTRODUCTION......Page 100
RESULTS......Page 101
Frailty Developmental Course......Page 102
REFERENCES......Page 103
METHODOLOGY......Page 106
Voices of Family Members......Page 107
CONCLUSION......Page 108
REFERENCES......Page 109
INTRODUCTION......Page 110
REFERENCES......Page 112
AIM......Page 116
RESULTS......Page 117
CONCLUSION......Page 118
PART III. BIOLOGICAL  AND BIOBEHAVIORAL ISSUES......Page 120
PHENOTYPIC OVERVIEW......Page 122
TARGETED TREATMENTS IN FXS......Page 124
ACKNOWLEDGMENTS......Page 125
REFERENCES......Page 126
INTRODUCTION......Page 130
REFERENCES......Page 131
INTRODUCTION......Page 132
Procedure......Page 133
High Frequency Problem Behaviors......Page 134
REFERENCES......Page 136
Participants and Procedure......Page 138
Incidence of Challenging Behavior......Page 139
DISCUSSION......Page 142
REFERENCES......Page 143
Alcohol......Page 144
Tobacco......Page 145
Alcohol and Tobacco......Page 146
REFERENCES......Page 147
PART IV. CHALLENGING BEHAVIOR AND OFFENDING......Page 148
METHODOLOGY......Page 150
SCOPE OF THE RESEARCH......Page 151
1. Disability Discrimination and Possible Human Rights Abuses......Page 152
4. A Needs Led Approach: Collaborative Multi-Agency Working......Page 153
REFERENCES......Page 154
INTRODUCTION......Page 156
FINDINGS CONCERNING MENTAL HEALTH SERVICES......Page 157
DISCUSSION......Page 159
REFERENCES......Page 160
INTRODUCTION......Page 162
 STAFF STRESS AND VIOLENCE IN SERVICES FOR PEOPLE WITH INTELLECTUAL DISABILITIES......Page 163
REFERENCES......Page 165
AGGRESSION IN SEVERE AND PROFOUND INTELLECTUAL DISABILITIES......Page 170
ETHOLOGY, SEVERE AND PROFOUND INTELLECTUAL DISABILITIES  AND AGGRESSIVE BEHAVIOR......Page 172
REFERENCES......Page 173
INTRODUCTION......Page 176
SIB, DRUG ADDICTION AND ADDICTION BEHAVIORS......Page 177
SIB AND SENSITIZATION......Page 178
REFERENCES......Page 179
PART V. COMMUNICATION  AND SOCIAL ISSUES......Page 182
INTRODUCTION......Page 184
Experiences in the Field of Autism......Page 185
The Protocol of the Professionals when Diagnosing Autism......Page 186
CONCLUSION......Page 188
REFERENCES......Page 189
Sample......Page 190
Statistical Analysis......Page 191
CONCLUSION......Page 192
REFERENCES......Page 193
BACKGROUND TO STUDY......Page 194
METHOD......Page 196
FINDINGS......Page 197
REFERENCES......Page 200
SURVEY FOR PARENTS......Page 202
OBSERVATIONAL STUDY......Page 203
REFERENCES......Page 204
INTRODUCTION......Page 206
ANALYSIS OF GAIT AFTER SIX MONTHS OF INDEPENDENT WALKING......Page 207
REFERENCES......Page 208
INTRODUCTION......Page 210
METHOD......Page 211
RESULTS AND DISCUSSION......Page 212
CONCLUSION......Page 214
REFERENCES......Page 215
PART VI. EMPOWERMENT, RIGHTS AND ETHICS......Page 216
INTRODUCTION......Page 218
REFERENCES......Page 220
MAPPING THE EXISTING TERRITORY......Page 222
MAPPING THE FUTURE TERRITORY......Page 224
REFERENCES......Page 225
INTRODUCTION......Page 228
REFERENCES......Page 231
THE RESEARCH......Page 234
CONCLUSION......Page 236
REFERENCES......Page 237
INTRODUCTION......Page 238
Characteristics of the Cohort......Page 239
The Relationship between the Complainant and the Accused......Page 240
OBSERVATIONS......Page 241
REFERENCES......Page 242
INTRODUCTION......Page 244
STORYSHARING IN RESIDENTIAL HOMES......Page 245
In the City......Page 246
REFERENCES......Page 247
PART VII. FAMILIES AND PARENTS......Page 250
INTRODUCTION......Page 252
Participants......Page 253
Age Related Opportunities and Challenges......Page 254
Life Domains......Page 255
REFERENCES......Page 256
INTRODUCTION......Page 258
Participants......Page 259
Clinical Levels of Stress......Page 260
Stress Differences across Parent Gender and Child Disability......Page 261
DISCUSSION......Page 262
REFERENCES......Page 263
INTRODUCTION......Page 266
Procedure......Page 267
RESULTS......Page 268
Independence......Page 269
Schooling......Page 270
DISCUSSION......Page 271
REFERENCES......Page 272
FAMILY QUALITY OF LIFE......Page 274
PROCEDURES......Page 276
ATTAINMENT......Page 277
SATISFACTION......Page 278
FUTURE ANALYSES......Page 281
REFERENCES......Page 282
WHO ARE THE CARERS?......Page 284
THE BURDEN OF CARE......Page 285
THE FAMILY CARERS STUDY......Page 287
DISCUSSION AND CONCLUSION......Page 288
REFERENCES......Page 289
PARTICIPANTS......Page 292
RESULTS......Page 293
DISCUSSION......Page 295
REFERENCES......Page 296
PART VIII. QUALITY OF LIFE AND SPIRITUALITY......Page 298
AIM......Page 300
BARRIER DEFINITION......Page 301
GENERAL MEASURES TO ELIMINATE BARRIERS......Page 304
CONCLUSION......Page 305
INTRODUCTION......Page 306
REFERENCE......Page 308
The Survey Instrument......Page 310
THE FINDINGS OF THE SURVEY......Page 312
Priorities......Page 313
Accredited or Not?......Page 314
What Are Some of the Challenges for Organisations in Supporting the Person?......Page 315
CONCLUSION......Page 316
REFERENCES......Page 317
APPENDIX 1.  PERSONAL OUTCOME MEASURES 2005......Page 318
INTRODUCTION......Page 320
Types of Social Capital......Page 321
Survey Instruments......Page 322
Findings......Page 324
ACTIVE COMMUNITY INVOLVEMENT AND VOLUNTEERING......Page 325
Comments From Participants and Families......Page 327
Some Reflections on Findings......Page 328
SOME WAYS TO BUILD YOUR SOCIAL CAPITAL*......Page 329
REFERENCES......Page 330
THE ROLE OF THE ENVIRONMENT......Page 332
MEASURING THE IMPACT OF ENVIRONMENTAL FACTORS ON PARTICIPATION......Page 334
REFERENCES......Page 335
DIACONAL PARADIGM......Page 338
DEALING WITH RESISTANCE......Page 339
LISTENING TO THE STORIES......Page 340
REFERENCES......Page 341
THE WORKSHOP: EXPLORING LIFE STORY WITH A “BASIC PUZZLE”......Page 342
OBSERVATIONS......Page 343
CONCLUSION......Page 344
SOCIAL CONSTRUCTIONS......Page 346
WHO ARE PEOPLE WITH DISABILITIES?......Page 347
SOME GENERAL CONCLUSIONS......Page 348
REFERENCES......Page 349
INTRODUCTION......Page 350
BACKGROUND......Page 354
II. The Church’s Calling......Page 355
III. Key Challenges for Church Engagement......Page 356
IV. New Eugenics or Old Eugenics......Page 357
NOTE......Page 358
INTRODUCTION......Page 360
NOTE......Page 362
CHALLENGES......Page 364
ADAPTING THE TASKS OF AGING TO PEOPLE WITH INTELLECTUAL DISABILITIES......Page 365
RESTORING HONOR TO AGING......Page 366
NOTE......Page 367
PART IX. POPULATIONS  AND SERVICE SYSTEMS......Page 368
PERSISTENT HEALTH DISPARITIES/INEQUALITIES......Page 370
 SHIFTING THE FOCUS FOR IMPROVING HEALTH OUTCOMES – ENHANCING SELF-DETERMINATION FOR INDIVIDUALS WITH INTELLECTUAL DISABILITIES......Page 371
REFERENCES......Page 376
INTRODUCTION......Page 378
RESULTS AND DISCUSSION......Page 379
REFERENCES......Page 381
BACKGROUND......Page 382
FINDINGS......Page 383
DISCUSSION......Page 384
REFERENCES......Page 385
INTRODUCTION......Page 390
REFERENCES......Page 392
INTRODUCTION......Page 394
QUALITY ASPECTS OF CARE AND SERVICE TRAJECTORIES......Page 395
CONCLUSION......Page 396
REFERENCES......Page 397
INTRODUCTION......Page 400
TOWARDS EQUAL CITIZENSHIP: THE UNITED NATIONS CONVENTION ON THE RIGHTS OF PERSONS WITH DISABILITIES......Page 401
STRATEGIES FOR EQUAL CITIZENSHIP......Page 402
CRAFTING STRATEGY......Page 405
REFERENCES......Page 406
INTRODUCTION......Page 408
BACKGROUND......Page 409
EMERGING RESULTS......Page 410
SOCIOCULTURAL MULTISENSORY WORK......Page 411
CONCLUSION......Page 412
REFERENCES......Page 413
THE ACCESS OF DIGITAL CULTURE FOR PMID MAY BE JUDGED  AS A MATTER OF HUMAN RIGHTS......Page 416
PARADIGMATIC CASES......Page 418
REFERENCES......Page 419
DATA COLLECTION......Page 420
Question 2 – People with Learning Disabilities that Have Long Standing Illnesses and Impairments are Likely to Have (Arranged in Rank Order so that 1= The Most Frequent, 5= The Least Frequent)......Page 421
Question 4 – List 3 Things that Have an Impact on Communication between Health Care Providers and People with Learning Disabilities......Page 422
Question 5 – Pre and Post Worshop Questionnaire......Page 423
INTRODUCTION......Page 426
REFERENCES......Page 428
INTRODUCTION......Page 430
DESCRIPTION OF THE EVALUATION CAPACITY BUILDING INITIATIVE......Page 431
EVALUATION OF THE ECB INITIATIVE......Page 433
REFERENCES......Page 435
INDEX......Page 438