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دانلود کتاب Birth Defects in India: Epidemiology and Public Health Implications
دانلود کتاب نقایص مادرزادی در هند: پیامدهای اپیدمیولوژی و سلامت عمومی
مشخصات کتاب
Birth Defects in India: Epidemiology and Public Health Implications
ویرایش: [1 ed.]
نویسندگان: Anita Kar
سری:
ISBN (شابک) : 9811615535, 9789811615535
ناشر: Springer
سال نشر: 2021
تعداد صفحات: 352
زبان: English
فرمت فایل : EPUB (درصورت درخواست کاربر به PDF، EPUB یا AZW3 تبدیل می شود)
حجم فایل: 28 Mb
قیمت کتاب (تومان) : 51,000
در صورت تبدیل فایل کتاب Birth Defects in India: Epidemiology and Public Health Implications به فرمت های PDF، EPUB، AZW3، MOBI و یا DJVU می توانید به پشتیبان اطلاع دهید تا فایل مورد نظر را تبدیل نمایند.
توجه داشته باشید کتاب نقایص مادرزادی در هند: پیامدهای اپیدمیولوژی و سلامت عمومی نسخه زبان اصلی می باشد و کتاب ترجمه شده به فارسی نمی باشد. وبسایت اینترنشنال لایبرری ارائه دهنده کتاب های زبان اصلی می باشد و هیچ گونه کتاب ترجمه شده یا نوشته شده به فارسی را ارائه نمی دهد.
توضیحاتی در مورد کتاب نقایص مادرزادی در هند: پیامدهای اپیدمیولوژی و سلامت عمومی
این کتاب اپیدمیولوژی نقایص مادرزادی و سلامت عمومی و پیامدهای اجتماعی آن را در هند ارائه می کند. به عنوان اختلالات دوران کودکی نادیده گرفته شده، نقایص مادرزادی در گفتگوهای جهانی سلامت مادر و کودک نامرئی باقی می مانند. خدمات نقص مادرزادی در هند در حال ظهور است. این کتاب به نقایص مادرزادی از منظر بهداشت عمومی می پردازد و کارکردهای اصلی یک سرویس نقص مادرزادی را شناسایی می کند. با در نظر گرفتن وظیفه پیچیده ارائه خدمات چند رشته ای برای کودکان دارای معلولیت و شرایط پیچیده پزشکی، این کتاب به بررسی فعالیت های اساسی بهداشت عمومی می پردازد که برای رسیدگی به این شرایط در هند انجام شده است. این کتاب نظارت بر نقایص مادرزادی و چالش های به دست آوردن اطلاعات دقیق و به موقع در مورد نقایص مادرزادی را در زمینه سیستم سلامت مختلط هند توصیف می کند. فرصت‌های پیشگیری از نقایص مادرزادی را مورد بحث قرار می‌دهد و ساختار و عملکرد یک سرویس ژنتیکی اضطراری را توصیف می‌کند. مسائل مربوط به یک سرویس یکپارچه برای کودکان با نیازهای مراقبت های بهداشتی ویژه، مانند غربالگری، مداخله زودهنگام و توانبخشی را بررسی می کند. علاوه بر این، تأثیر این شرایط را بر مراقبین، از جمله انگ نقص مادرزادی، توصیف می‌کند. این کتاب نه تنها به شکاف دانش در زمینه بهداشت عمومی در هند می پردازد، بلکه به بررسی مسائل گسترده تر خدمات برای کودکان دارای معلولیت و شرایط ناتوانی در محیط های با درآمد کم و متوسط می پردازد که دسترسی به مراقبت های بهداشتی جهانی نیست. با توجه به عمق و گستردگی پوشش، این کتاب یک منبع ضروری برای محققان نقص مادرزادی، محققان در زمینه سلامت مادر و کودک، سلامت عمومی/بهداشت جهانی، پژوهشگران معلولیت، و محققان حوزه‌های علوم توانبخشی، پرستاری و مردم شناسی. این کتاب خواندنی ارزشمندی برای دپارتمان‌های پزشکی اجتماعی/پزشکی جامعه، دوره‌های بهداشت جهانی، و مدارس بهداشت عمومی در هند و سایر کشورهای با درآمد متوسط پایین خواهد بود.
توضیحاتی درمورد کتاب به خارجی
This book presents the epidemiology of birth defects and their public health and social implications in India. As neglected childhood disorders, birth defects remain invisible in global maternal and child health dialogues. Birth defects services are emerging in India. This book approaches birth defects from a public health perspective, identifying the core functions of a birth defects service. Keeping in mind the complex task of providing multidisciplinary services for children with disabilities and complex medical conditions, the book examines the basic public health activities that have been put in place to address these conditions in India. The book describes birth defects surveillance and the challenges of acquiring accurate and timely data on birth defects against the background of India’s mixed health system. It discusses opportunities for prevention of birth defects and describes the structure and function of an emergent genetic service. It explores issues related to an integrated service for children with special healthcare needs, such as screening, early intervention, and rehabilitation. Furthermore, it describes the impact of these conditions on caregivers, including birth defects stigma. This book not only addresses a knowledge gap in the field of public health in India, but also explores the broader issues of services for children with disabilities and disabling conditions in low and low-middle income settings where access to health care is not universal. Given the depth and breadth of its coverage, the book offers an essential resource for birth defects researchers, researchers in the field of maternal and child health, public health/ global health, disability researchers, and researchers from the fields of rehabilitation sciences, nursing and anthropology. This book will be a valuable read for social medicine/community medicine departments, global health courses, and public health schools in India and other low middle-income countries.
فهرست مطالب
Preface Acknowledgements Introduction: Birth Defects and Public Health in Low and Middle-Income Countries Contents Editor and Contributors Abbreviations List of Figures List of Tables List of Boxes Part I A Public Health Approach 1 Birth Defects: A Public Health Approach The Need for Birth Defects Services in LMICs Individual, Health and Social Welfare System Impact Magnitude of Congenital Anomalies Epidemiological Transition A Public Health Framework Birth Defect Surveillance Prevention of Birth Defects Integrated medical and rehabilitation services Other Public Health Activities The World Health Assembly Resolution on Birth Defects India as an Example of a LMIC Socio-demographic and Health Indicators Socio-demographic Index and Epidemiological Transition Health System Maternal and Child Health Services References 2 Some Common Birth Defects Section I : Common Congenital Anomalies/Malformations Congenital Heart Defects Orofacial Clefts Spina Bifida and Neural Tube Defects Hydrocephalus, Macrocephaly, Microcephaly Clubfoot (Congenital Talipes Equinovarus) Developmental Dysplasia of the Hip Congenital Limb Defects Polydactyly Section II : Developmental (Neuromotor) Disabilities Intellectual Disability Down Syndrome Attention-Deficit/Hyperactivity Disorder Autism Spectrum Disorders Cerebral Palsy Congenital Hearing Impairment Vision Impairment/Blindness Section III : Common Single Gene Disorders Hemoglobinopathies Hemophilia Muscular Dystrophy Achondroplasia Conclusion References 3 Thalidomide: Understanding the Responsibilities of a Birth Defects Service Thalidomide Thalidomide Distribution Across the World Thalidomide Embryopathy/Syndrome Health and Social Impact of Thalidomide Clinical Needs of Children Impact of Disability: Schooling Impact on Parents Health and Welfare Needs with Ageing The Response to the Thalidomide Tragedy Health and Social Sector Service Response Birth Defects Surveillance Drug Regulation Abortion Legislation Compensation and Economic Support Regulated Reintroduction of Thalidomide Thalidomide in Developing Countries Lessons for a Birth Defects Service Zika Virus and the Public Health Response Congenital Zika Virus Syndrome Public Health Response Health System Challenges Impact on Families References Part II Surveillance, Registries and Magnitude 4 Birth Defects Surveillance in India Background Birth Defects Surveillance Birth Defects Surveillance: Factors Affecting Reporting of Prevalence Data Birth Defects Surveillance in LMICs Birth Defects Surveillance in India Summary and Conclusion References 5 Rare Disease Registries: A Case Study of the Haemophilia Registry in India Disease Registries Rare Diseases Rare Disease registries RDs and registries in India The Haemophilia Registry in India Haemophilia Evolution of Haemophilia Services in India World Federation of Hemophilia : Global mentorship Annual Global Surveys and the National Hemophilia Registry of India Registry data for mobilizing access to care References 6 Magnitude of Congenital Anomalies in India Child Health in India Sources of Data Congenital Anomaly Prevalence Individual Research Studies PUBOs Study Estimates Estimates from the Modell Database Rashtriya Bal Swasthya Karyakram Data Data from Birth Defects Surveillance Systems in India Congenital Anomaly Mortality Data from the Medical Certification of Cause of Death National Child Mortality Estimates Cause-Specific Mortality Estimates Global Burden of Disease Study GBDI Congenital Birth Defect Data Mortality Data from MGDb Disability Summary References 7 Magnitude of Developmental Disabilities in India Childhood Development Developmental Delays and Disabilities Developmental Disabilities Tools for Measuring Developmental Disabilities Sources of Data Developmental Disability Surveillance National Surveys Ad Hoc Studies Prevalence of Developmental Disabilities in India Selected Conditions Epilepsy Cerebral Palsy Intellectual Disabilities Autism Spectrum Disorders Attention-Deficit/Hyperactive Disorders Data from Global Burden of Disease Study India Conclusion References 8 Magnitude and Characteristics of Children with Congenital Disabilities in India Magnitude of CWD Prevalence of Childhood Disability by Type of Disability Magnitude of CWCD Age-Specific Prevalence Per 10,000 Duration of Disability Characteristics of CWCD Severity of Disability Self-care and Utilization of Services Conclusions References Part III Prevention 9 Preventing Congenital Anomalies Through Existing Maternal and Child Health Services in India Background Aetiology of Congenital Anomalies Teratogens Environmental Risk Factors for Congenital Anomalies Shared Risk Factors with Other Adverse Pregnancy Outcomes Prevalence of Risk Factors for Congenital Anomalies and APOs in Indian Women Prevention Effectiveness of Preventive Measures Opportunities for Prevention in Public Health Programmes: RMNCHA+ Programme in India References 10 Neural Tube Defects and Folate Status in India Neural Tube Defects Magnitude of NTDs in India Risk Factors Folate Assessment of Folate Status Cut-Offs for Determining Folate Status Prevalence of Folate Deficiency in India Determinants of Folate Deficiency Maternal Methylenetetrahydrofolate Reductase (MTHFR) 677C > T Polymorphism Summary and Conclusion References 11 Haemoglobinopathies: Genetic Services in India Haemoglobinopathies Epidemiology Impact of Thalassemia on Patients and Families in Low-Income Settings Quality of Life (QoL) Out-of-Pocket Expenditure Basic Components of a Genetic Service History of Development of Thalassemia Services in India Guidelines on Haemoglobinopathies in India Prevention Strategies Pretest and Post-test Counselling in Community-Based Screening Programmes Genetic Counselling Education, Testing Laboratories in India Medical Care Global Strategies for Prevention of Haemoglobinopathies Ethical Considerations for Indian Genetic Screening Services Monitoring Research References Part IV Services 12 Medical, Rehabilitation and Social Welfare Services for Children with Birth Defects and Developmental Disabilities in India Organization of Health, Rehabilitation and Social Welfare Services in India Medical Services Organization of Government and Private Medical Services in India Government General Medical Services in India Birth Defects Service Components in the Maternal and Child Health Programme Prenatal Detection of Foetal Anomalies Care of Small and Sick Newborns Medical Care for Selected Birth Defects and Developmental Disabilities: RBSK Medical Services for Genetic Disorders Haemoglobinopathies Haemophilia Rehabilitation Services Rehabilitation Services Through DEICs Rehabilitation Services Through National Institutes and Centres Social Welfare Services Disability Certification Disability Policy and Legislations Social Rehabilitation Services The National Trust Education, Skills, Sports, Employment Medical Insurance Assistive Devices Certification of Rehabilitation Professionals Legal Services Conclusion References 13 Early Childhood Intervention Services in India Early Child Growth and Development Milestones of Development Factors Affecting Growth and Development of a Child Early Childhood Intervention Early Intervention Strategies Early Intervention Services in India District-Based Model for Early Intervention for Children with disabilities Conclusion References Part V Quality of Life 14 Birth Defects Stigma Stigma Birth Defects Stigma Birth Defects and the Dimensions of Stigma Public Health Activities and Birth Defects Stigma Genetic Testing, Genetic Screening and Stigma Prenatal Testing and Abortion Stigma Disability Parents and Caregivers Stigma Prevention in a Birth Defects Service References 15 Parenting a Child with a Disability: A Review of Caregivers’ Needs in India and Service Implications Introduction Evolution of Family Centred Care (FCC) Medical and Rehabilitation Needs of Caregivers of Children with Disability in Industrialized Countries Needs During Diagnosis Need for Information on Disability Services Needs of Information on Schooling, Recreation, Assistive Devices Needs During Transition Beyond Schooling Financial Support Parent and Family-Centred Needs Needs Related to Respite Care Medical and Rehabilitation Needs of Caregivers of Children with Disability in LMICs Developing a Model to Address Caregivers Needs in India Discussion References 16 Quality of Life and Psychosocial Needs of Caregivers of Children with Birth Defects: A Case Study of Haemophilia Psychosocial Stressors of Haemophilia: A Case Study References
