Working with Deaf People: A Handbook for Healthcare Professionals

Half-title......Page 3
Title......Page 5
Copyright......Page 6
Contents......Page 7
Glossary......Page 10
Foreword......Page 15
Pre-Publication Peer Reviews......Page 17
Use of the book......Page 21
Anti-discrimination legislation......Page 26
Acknowledgements......Page 28
The authors......Page 30
Overview of deafness and hearing loss......Page 33
Terminology......Page 34
deaf and Deaf......Page 36
Terms used by people with deafblindness......Page 39
Frequency of deafness, NF2 and deafblindness......Page 41
Congenital vs. acquired......Page 43
Genetic vs. environmental......Page 44
Syndromal vs. non-syndromal......Page 45
Causes of deafness......Page 46
Comment......Page 47
Presenting symptoms of NF2......Page 48
Diagnosis......Page 49
Comment......Page 50
Management and treatment of NF2......Page 51
Deafblindness......Page 53
Usher syndrome......Page 55
Alstrom syndrome......Page 57
Charge......Page 58
Older people......Page 59
Seeing a hearing aid......Page 61
Dissatisfaction with the health services......Page 63
Comments......Page 67
Use of genetics services......Page 68
Knowledge and fears of genetic counselling......Page 69
The inadvertently patronising health professional......Page 73
What could be done differently?......Page 76
Modes of communication......Page 77
Spoken language......Page 78
National Sign Language......Page 79
Sign Supported Spoken Language (SSSL)......Page 80
Difficulties with speech......Page 82
Comments......Page 84
Lip-reading......Page 85
Comment......Page 87
Reading/writing skills......Page 88
Planning a deaf-friendly service......Page 92
Before the healthcare consultation......Page 94
Preferences for communication in a clinical setting......Page 96
Deaf awareness......Page 97
Deaf awareness for deaf sign language users......Page 98
Deaf awareness for hard of hearing speech users......Page 99
Comments......Page 101
Communication in a clinical setting......Page 102
Types of interpreter and communication support......Page 104
Working with interpreters......Page 105
Text-based communication support......Page 112
Communication over the telephone......Page 114
Voice-to-text software......Page 115
Medical model......Page 116
Comment......Page 117
Cultural model......Page 118
Comment......Page 121
Historical context to deafness, eugenics and genetics......Page 123
Training recommendations for staff working in genetics services......Page 126
Practical issues to think about in relation to any healthcare consultation......Page 127
Timing of consultations......Page 128
Use of language......Page 130
Comments......Page 132
Comments......Page 134
Taking a family history......Page 136
Asking about a family history of deafness......Page 138
Health-related knowledge......Page 139
Differences between healthcare culture and Deaf culture......Page 141
What could be done differently?......Page 145
An inappropriate focus on deafness......Page 147
Comment......Page 148
Visual aids......Page 149
Repetition and rehearsal......Page 150
Psychological impact of hearing loss......Page 152
Emotional issues to consider in a consultation......Page 155
Tinnitus......Page 159
Post-clinic issues......Page 160
Overview of NF2......Page 161
A consultation in the specialist multidisciplinary NF2 clinic......Page 164
Comment......Page 168
Comment......Page 169
Emotional issues......Page 170
Comment......Page 171
The impact of visual loss......Page 173
Communication issues with deafblind clients......Page 177
Recommendations for the clinic......Page 179
The physical environment......Page 181
Comments......Page 183
Conversing in visual sign language with someone who has deafblindness......Page 184
Conversing in tactile sign language with someone who has deafblindness......Page 185
Comment......Page 188
Using written language to communicate......Page 189
Social-haptic communication......Page 190
Dealing with a progressive loss of ability......Page 191
Interpreters for people with deafblindness......Page 192
Identity and emotional issues......Page 196
Comments......Page 198
Charities and support groups......Page 200
Companies that will translate written material into plain English or BSL......Page 201
Miscellaneous......Page 202
Diagnostic criteria for NF2......Page 203
References......Page 205
Index......Page 219