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دانلود کتاب Waiting for Cancer to Come: Women’s Experiences with Genetic Testing and Medical Decision Making for Breast and Ovarian Cancer
دانلود کتاب انتظار برای سرطان: تجربیات زنان با آزمایش ژنتیک و تصمیم گیری پزشکی برای سرطان سینه و تخمدان
مشخصات کتاب
Waiting for Cancer to Come: Women’s Experiences with Genetic Testing and Medical Decision Making for Breast and Ovarian Cancer
ویرایش:
نویسندگان: Sharlene Hesse-Biber
سری:
ISBN (شابک) : 0472052195, 9780472052196
ناشر: University of Michigan Press
سال نشر: 2014
تعداد صفحات: 227
زبان: English
فرمت فایل : PDF (درصورت درخواست کاربر به PDF، EPUB یا AZW3 تبدیل می شود)
حجم فایل: 5 مگابایت
قیمت کتاب (تومان) : 54,000
در صورت تبدیل فایل کتاب Waiting for Cancer to Come: Women’s Experiences with Genetic Testing and Medical Decision Making for Breast and Ovarian Cancer به فرمت های PDF، EPUB، AZW3، MOBI و یا DJVU می توانید به پشتیبان اطلاع دهید تا فایل مورد نظر را تبدیل نمایند.
توجه داشته باشید کتاب انتظار برای سرطان: تجربیات زنان با آزمایش ژنتیک و تصمیم گیری پزشکی برای سرطان سینه و تخمدان نسخه زبان اصلی می باشد و کتاب ترجمه شده به فارسی نمی باشد. وبسایت اینترنشنال لایبرری ارائه دهنده کتاب های زبان اصلی می باشد و هیچ گونه کتاب ترجمه شده یا نوشته شده به فارسی را ارائه نمی دهد.
توضیحاتی در مورد کتاب انتظار برای سرطان: تجربیات زنان با آزمایش ژنتیک و تصمیم گیری پزشکی برای سرطان سینه و تخمدان
انتظار برای سرطان بیاید داستان زنانی را روایت می کند که با خطر بالای ابتلا به سرطان دست و پنجه نرم می کنند. این کتاب بر اساس مصاحبه‌ها و نظرسنجی‌های ده‌ها زن، تجربیات متنوع و در عین حال درهم تنیده زنانی را که برای جهش‌های ژن BRCA 1/2 مثبت بوده‌اند، گرد هم می‌آورد، که نشان‌دهنده خطر بالاتر ابتلا به سرطان سینه و تخمدان است. شارلین هسه بیبر این روایت‌ها را به تصویر می‌کشد و سفرهای زنان را از تصمیم‌گیری برای غربالگری برای BRCA، تا یادگیری مثبت شدن تست و مقابله با خطراتشان دنبال می‌کند. بسیاری از زنان از قبل چالش‌های یک سابقه خانوادگی آغشته به سرطان را می‌دانند و اکنون خود را با دانش مخرب خطر ژنتیکی خود می‌بینند. با استفاده از صدای خود زنان برای توصیف تجربه ناشناخته BRCA، Waiting for Cancer to Come به عوامل مختلف احساسی، اجتماعی، اقتصادی و روانی در تصمیم گیری زنان در مورد آزمایش و پیشگیری از سرطان می پردازد.\r\n\ r\nشارلین هسه بیبر، استاد جامعه شناسی و مدیر مطالعات زنان
توضیحاتی درمورد کتاب به خارجی
Waiting for Cancer to Come tells the stories of women who are struggling with their high risk for cancer. Based on interviews and surveys of dozens of women, this book pieces together the diverse yet interlocking experiences of women who have tested positive for the BRCA 1/2 gene mutations, which indicate a higher risk of developing breast and ovarian cancer. Sharlene Hesse-Biber brings these narratives to light and follows women’s journeys from deciding to get screened for BRCA, to learning the test has come back positive, to dealing with their risk. Many women already know the challenges of a family history riddled with cancer and now find themselves with the devastating knowledge of their own genetic risk. Using the voices of the women themselves to describe the under-explored BRCA experience, Waiting for Cancer to Come looks at the varied emotional, social, economic, and psychological factors at play in women’s decisions about testing and cancer prevention.\r\n\r\nSharlene Hesse-Biber is Professor of Sociology and the Director of Women’s Studies & Gender Studies Program at Boston College.\r\n\r\nPraise / Awards\r\n\"Waiting for Cancer to Come is an outstanding accomplishment. Sharlene Hesse-Biber innovatively weaves the interviews with research on the genetic testing industry and new ways in which one can think about breast cancer and the pharmaceutical/BRCA testing industries that accompany this epidemic. She is very well versed in interviewing techniques, as well as in conducting archival and related research. The documentation of the research and how it was conducted makes it possible for readers to know exactly what was done, when, and how the analysis has been pursued, and to be able to put together these disparate sources is a real tour de force!\"\r\n—Kum-Kum Bhavnani, University of California, Santa Barbara\r\n\r\n\"From the beginning poem and compelling anecdote to the conclusion, Sharlene Hesse-Biber tells an absorbing story of issues and events leading to or avoiding testing for the BRCA genetic mutation in her interviewees\' lives. She gives the reader an intimate view of women\'s (and several men\'s) lives, offers a sensitive analysis of their situations, and explains the implications of their choices. Professor Hesse-Biber dispels any notion that women with the BRCA mutation or those with other types of breast cancer face the same questions. Instead, their specific situations, goals, and relationships shape how they respond to the test and to waiting for and having cancer. This book reveals the ambiguities and ambivalent choices that testing positive causes and confirms that testing negative does not necessarily put an end to ominous questions. Waiting for Cancer to Come shows how hard it is to choose between treatment alternatives. No treatment choice ends uncertainty for these women, even though some women try to view their treatment, such as seeking a prophylactic mastectomy, as symbolizing an end to uncertainty. However, Professor Hesse-Biber portrays how uncertainty persists with haunting consequences.\"\"\r\n—Kathy Charmaz, Sonoma State University\r\n\r\n\"The book is a testament to the value of avoiding the fragmentation of women\'s stories and depicting the rich complexity of the fabric of their lives that emerges through their own words; it not only draws out this diversity and complexity but also contextualises it in its social, political and economic context.\"\r\n---Sociology of Health and Illness\r\n\r\n\"Sharlene Hesse-Biber’s new book Waiting for Cancer to Come offers insight into the complexity of living in a genomic age... Waiting for Cancer to Come is a must read for those interested in women’s health, science and technology studies, medical sociology, and feminist and qualitative methods.\"\r\n---Breast Cancer Consortium\r\n\r\n\"Sociologist Hesse-Biber is well regarded for her work on research methodologies ... Her most recent book, Waiting for Cancer to Come, presents qualitative analysis of over 60 in-depth interviews with women who have tested positive for genetic mutations that increase their risk of developing breast or ovarian cancer, and effectively demonstrates feminist, mixed-methods research. ... Throughout the rest of the book, Hesse-Biber prioritizes the voices and experiences of women as they calculate their cancer risk, make decisions to undergo major surgery or opt for increased surveillance, and negotiate the new normal of their lives after a positive test.\"\r\n---CHOICE\r\n\r\n\"I highly recommend this book to doctors, genetic counselors, advocates, and anyone else interested in truly understanding the complexity behind the variables of genetic testing.\"\r\n---Georgia Hurst, Beyond Risk\r\n\r\n\"This is a remarkable and vitally-important book...[Hesse-Biber\'s] review of relevant literature is comprehensive, thoughtful, and gracefully integrated into the overall narrative of the book. Women who are considering genetic testing for breast or ovarian cancer ought to read this book, and of course so should professionals, psychotherapists, and family members, and friends--it is a genuinely helpful and informative.\"\r\n--International Human Science Research Newsletter\r\n\r\nWinner, Alpha Sigma Nu Book Award, 2015
فهرست مطالب
Prologue 1 1 The Genetic Testing Industry: Capitalizing on Fear, Selling Empowerment 15 2 Ready for the Test 43 3 “You’re BRCA Positive” 63 4 Waiting and Watching 85 5 The Surgical Fix 106 6 Finding a New Normal 126 7 Toward Empowerment 149 Epilogue: Through Their Eyes: Studying Women’s Health 173 Bibliography 193 Index 207
