PUBLIC HEALTH PERSPECTIVES ON DISABILITY : science,social justice, ethics.

Foreword
Societal Importance of Addressing Disability
Significance of Sourcebook on Public Health and Disability
Major Themes Related to Public Health and Disability
References
Contents
About the Editors
Contributors
Part I: Core Public Health Topics
	Chapter 1: Introduction
		1.1 Foundations of Public Health Education
		1.2 Barriers to Inclusion
		1.3 Changes During the Decade: Assessment
		1.4 Changes During the Decade: Policy
		1.5 Changes During the Decade: Assurance
		1.6 Conclusion
		References
	Chapter 2: Epidemiology and Biostatistics
		2.1 Introduction
		2.2 Defining and Some Parameters of Disability Epidemiology
		2.3 Contributing Epidemiology Disciplines and Interdisciplinary Collaboration
		2.4 Disability Surveillance Data and Secondary Analysis
			2.4.1 Introduction
			2.4.2 Measures and Classification of Disability
				2.4.2.1 Surveillance Measures
				2.4.2.2 Detailed Classification Systems: The ICF
			2.4.3 Selected Data Sources
				2.4.3.1 The Behavioral Risk Factor Surveillance System (BRFSS)
				2.4.3.2 The National Health Interview Survey (NHIS)
				2.4.3.3 The Medical Expenditure Panel Study (MEPS)
				2.4.3.4 The Census Bureau Resources
		2.5 Selected Methodological Issues in Disability Research
			2.5.1 Introduction
			2.5.2 Sample Size
			2.5.3 Measurement Issues (Classification and Bias)
			2.5.4 Multi-level Studies
			2.5.5 Field Methods in Disability Epidemiology
		2.6 Protection of Human Subjects in Disability Public Health Research
		2.7 Future Directions and the Role of Epidemiology
		2.8 Epilogue
		2.9. Appendix: Incorporating Disability Examples into Epidemiology Coursework: Questions and Examples
		References
	Chapter 3: Social Determinants of Health and Disability
		3.1 Identifying Social Determinants of Health
		3.2 Evolving Understanding of Social Determinants of Health
		3.3 Extending the Investigation of Social Determinants of Health to Populations with Disability
			3.3.1 Evolving Conceptualizations of Disability
			3.3.2 Merging Social Determinants of Health and the ICF: An Example
		3.4 Empirical Evidence of Social Determinants Effects upon Health
		3.5 Conclusions
		References
	Chapter 4: Disability, Intersectionality, and Inequity: Life at the Margins
		4.1 Introduction
		4.2 Key Concepts
			4.2.1 Inequality, Inequity, and Disparity
			4.2.2 Disability Versus Poor Health
		4.3 Health Inequities Experienced by People with Disabilities
		4.4 Intersections of Disability with Other Marginalized Identities: Compounded Inequities
			4.4.1 Race and Ethnicity
			4.4.2 Gender
			4.4.3 Sexual Orientation
			4.4.4 Rurality
		4.5 Addressing Compounded Inequities
		4.6 Discussion Questions
		References
	Chapter 5: Environmental Contexts Shaping Disability and Health
		5.1 Introduction
		5.2 Learning Objectives
		5.3 Background
			5.3.1 Theoretical/Conceptual Models
			5.3.2 Environment Disability Mismatch
		5.4 The Universal Design Approach
		5.5 Integrating Universal Design into Public Health
			5.5.1 Core Function 1: Assessment
				5.5.1.1 Case Study: UD in Assessment
			5.5.2 Core Function 2: Policy Development
				5.5.2.1 Case Study: UD in Policy Development
			5.5.3 Core Function 3: Assurance
				5.5.3.1 Case Study: UD in Assurance
		5.6 Research Innovations
		5.7 Future Needs
		References
	Chapter 6: Public Health Ethics and Disability: Centering Disability Justice
		6.1 Public Health Ethics and Disability: Centering Disability Justice
		6.2 Evolving Conceptions of Healthcare Ethics and Disability
		6.3 A New Era of Flourishing and Disability Justice
			6.3.1 Disability Ethics and Justice as an Ally and Asset to Public Health Practice
		6.4 Conclusion
		6.5 Resources for Further Exploration
		References
	Chapter 7: International Public Health and Global Disability
		7.1 Stigma and Discrimination
		7.2 Disability as a Human Rights Issue
			7.2.1 Disability Policies and Programs and Global Health
			7.2.2 The World Programme of Action Concerning Disabled Persons (WPA)
			7.2.3 Standard Rules on the Equalization of Opportunities for Persons with Disabilities
			7.2.4 Convention on the Rights of Persons with Disabilities (CRPD)
				7.2.4.1 Guiding Principles of the Convention
			7.2.5 Convention on the Rights of the Child (CRC)
		7.3 Disability as a Development Issue: Sustainable Development Goals
		7.4 Disability as a Public Health Issue
			7.4.1 Health Classifications in Global Public Health
			7.4.2 The ICF Framework for the Study of Human Functioning and Disability
		7.5 Assessment
			7.5.1 Disability: A Burden of Disease?
		7.6 Policy Development
		7.7 Assurance of Health and Health Care
			7.7.1 Poverty and Disability
		7.8 Public Health Services
		7.9 Directions for Global Public Health and Disability
		References
Part II: Public Health Applications
	Chapter 8: Disability and Health Programs: Emerging Partners
		8.1 Increased Interest in Health for People with Disabilities
		8.2 Shaping Disability and Health Programs
		8.3 Evolution of CDC Disability and Health Programs
		8.4 CDC Disability and Health Programs
		8.5 Challenges and Future Directions
		References
	Chapter 9: Children with Special Healthcare Needs
		9.1 Identification of CSHCN
		9.2 Social Determinants of CSHCN
		9.3 Health and Health-Related Services for CSHCN
		9.4 Continuing Issues
		9.5 Questions for Discussion
		References
	Chapter 10: Achieving Equity: Including Women with Disabilities in Maternal and Child Health Policies and Programs
		10.1 Introduction and Historical Background
		10.2 Need and Disparities
			10.2.1 Preconception Health
			10.2.2 Family Planning and Contraception
			10.2.3 Pregnancy Care and Outcomes
			10.2.4 Postpartum Health
			10.2.5 Considering the Social Determinants of Health
		10.3 Achieving Equity Through Inclusion
			10.3.1 Integrated Life Course Approach
			10.3.2 Inclusion in Public Health Programs/Interventions
				10.3.2.1 Existing Programs
				10.3.2.2 New Initiatives
			10.3.3 Sexual and Reproductive Health (and Reproductive Justice)
			10.3.4 Health Promotion
		10.4 Conclusion
		10.5 Discussion Questions
		References
	Chapter 11: Aging with a Disability
		11.1 Introduction
			11.1.1 Aging with Disability vs. Aging into Disability
		11.2 Key Concepts and Theoretical Frameworks
			11.2.1 Aging from a Life Course Perspective: Cumulative Advantage and Disadvantage
			11.2.2 The International Classification of Functioning, Disability, and Health
			11.2.3 The Model of Healthcare Disparities and Disability (MHDD)
			11.2.4 The Ecological Model of Adaptation and Aging
			11.2.5 Layering Disability on Top of an Aging and Life Course Framework
		11.3 Technology to Support Healthy Aging with Disability
			11.3.1 Technology Development and Disability/Impairment-Related Considerations
			11.3.2 Transportation Technology
		11.4 Environments and Communities to Support Healthy Aging with Disability
			11.4.1 Aging in Place
			11.4.2 Housing Accessibility and Affordability
			11.4.3 Holistic Socio-Environmental Design
		11.5 Conclusions
		11.6 Resources for Further Exploration
		References
	Chapter 12: Disasters and Disability: Rhetoric and Reality
		12.1 Definitions
		12.2 International Guidance
		12.3 US Public and Private Disability Initiatives
		12.4 From Intent to Sobering Reality
		12.5 Principles for Preparation and Response
		12.6 Specific Recommendations for Preparedness and Response
			12.6.1 American Red Cross and US Federal Emergency Management Agency (ARC/FEMA, 2019)
			12.6.2 After Event Reports from North Carolina and California
		12.7 Directions for Public Health Perceptions, Training, and Data
			12.7.1 Perceptions
			12.7.2 Training
			12.7.3 Data
		12.8 Disaster Exercises
		References
	Chapter 13: Law, Benefits, Disability Rights, and Public Health: A Sum Greater than the Parts?
		13.1 Introduction
		13.2 Laws Addressing Welfare and Benefits
			13.2.1 Creation of the Bureau of Indian Affairs Health Division, Forerunner to the Indian Health Service, and Subsequent Legislation
			13.2.2 Social Security Act (42 U.S.C. §§ 1396 et seq.)
			13.2.3 Titles XVIII and IX of the Social Security Act (Medicare and Medicaid Acts)
			13.2.4 Developmental Disabilities Legislation
		13.3 Laws Addressing Discrimination
			13.3.1 Section 504 of the Rehabilitation Act of 1973
			13.3.2 Individuals with Disabilities Education Act
			13.3.3 Fair Housing Act
			13.3.4 Americans with Disabilities Act
			13.3.5 Paul Wellstone and Pete Domenici Mental Health Parity and Addiction Equity Act of 2008 and Genetic Information Non-discrimination Act of 2008
			13.3.6 The Affordable Care Act, Including Section 1557
		13.4 Conclusion
		13.5 Additional Legal References and Resources of Significance to People with Disabilities
		13.6 Questions
		References
	Chapter 14: The Interrelationship of Health Insurance and Employment for People with Disabilities
		14.1 A Brief History of American Health Insurance
		14.2 How This System Affects Employment for People with Disabilities
		14.3 The Application Process for Federal Disability Benefits
		14.4 SSDI and Medicare
		14.5 SSI and Medicaid
		14.6 Addressing Systemic Disincentives to Employment for People with Disabilities
			14.6.1 SSI, SSDI, Medicaid, and Medicare
			14.6.2 Other Barriers to Employment
		14.7 How the Affordable Care Act Affects People with Disabilities
			14.7.1 Prohibition of Exclusions Based on Pre-existing Conditions
			14.7.2 Prohibition of Annual and Lifetime Caps on Coverage
			14.7.3 Coverage of Essential Health Benefits
			14.7.4 Coverage of Children to Age 26
			14.7.5 Subsidized Coverage Through the Marketplace
			14.7.6 Medicaid Expansion
		14.8 Implications for Public Health
		References
	Chapter 15: Public Health, Work, and Disability
		15.1 Introduction
		15.2 Disability and Work
			15.2.1 History of Rehabilitation
			15.2.2 Unfulfilled Opportunities
			15.2.3 Employment First
		15.3 Systems Involved in Employment Engagement for People with Disabilities
			15.3.1 Workforce System
			15.3.2 Healthcare System
			15.3.3 Social Services System
			15.3.4 Education System
		15.4 Healthcare Model of Disability Related to Work
		15.5 Public Health Role in Return to Work/Stay at Work
		15.6 Universal Design Approach
		15.7 Conclusion
		References
	Chapter 16: Preparing a Disability-Competent Workforce
		16.1 Workforce Capacity Opportunity
		16.2 Public Health Overview and Relation to Disability
		16.3 People with Disabilities: A Growing Demographic in the US
		16.4 Health Disparities for People with Disabilities
			16.4.1 Communication
		16.5 Need for Disability Training
		16.6 New Curricula Frameworks
		16.7 Development and Alignment with Training Standards
		16.8 Core Competencies on Disability for Health Care Education
			16.8.1 Development and Alignment with Training Standards
		16.9 Progress Toward Disability Inclusion in Public Health
			16.9.1 Competency Alignment to Prepare a Broad Workforce
		16.10 Strategies for Integrating Disability into Professional Education and Training
			16.10.1 Strategy 1: Weave Disability Perspective Throughout Training
			16.10.2 Strategy 2: Add Disability Content to Public Health and Healthcare Education Standards
			16.10.3 Strategy 3: Add Disability Competencies into Education Standards
		16.11 Workforce Supports for Including People with Disabilities: How to Take Action
			16.11.1 Factors of Readiness, Capacity Building, and Capacity
		16.12 Future Workforce
			16.12.1 A Note on Resilience
		16.13 Learn More
		References
Index