Perspectives on palliative care for children and young people : a global discourse

Cover
 Half Title
 Title Page
 Copyright Page
 Contents
 Foreword
 Preface
 About the editors
 List of contributors
 Acknowledgements
 Introducing our discourse
 Section 1: A global overview Section introduction
 1 Paediatric palliative care as a basic human right
 2 The International Children's Palliative Care Network (ICPCN): a global overview
 3 Organisation of care in the UK
 4 Organisation of care in Romania
 5 Organisation of care in Uganda
 6 Organisation of care in South Africa
 Section 2: Focusing on families: hearing the evidence Section introduction. 7 A research perspective: narrative research8 Part 1: 'Where's my sitcom?' The young adult's voice
 Part 2: Commentary on the young adult's story
 9 Part 1: The parent's voice
 Part 2: Jamie's continuing care domains
 Part 3: Commentary on the parent's story: the key to integrating services
 10 Part 1: A child's life path
 Part 2: A philosophical perspective on a father's tale
 11 Hearing the voices of parents and carers
 12 Hearing the voices of siblings
 13 Transitions within the family
 Section 3: Minimising crisis points in paediatric palliative care Section introduction. 14 Pathways in palliative care15 Use of clinical practice guidelines and critical pathways
 16 Minimising crisis points in paediatric palliative care: the ACT care pathways in action
 Section 4: Supporting transitions Section introduction
 17 Transitions within acute care settings: the chaplain's perspective
 18 Transitions at the beginning of life: psychological support
 19 Managing transitions to hospice care: the hospice consultant's perspective
 20 Supporting transitions: effective palliative care teams
 Section 5: Evidence/knowledge transfer into practice Section introduction. 21 Knowledge transfer within the general paediatric setting22 Supporting learning in paediatric palliative care
 23 The path to excellence
 Index.