Parenting and Disability: Disabled Parents' Experiences of Raising Children

PARENTING AND DISABILITY......Page 2
Contents......Page 6
List of tables......Page 8
Acknowledgements......Page 9
Terminology......Page 10
Introduction......Page 12
Introduction......Page 16
Disabled parents: invisibility and pathology......Page 17
The parenting of disabled people as a social problem: the case of ‘young carers’......Page 28
The legislative and policy context......Page 34
Conclusions......Page 42
2. Demographic characteristics of the final sample......Page 46
Introduction......Page 52
Use of formal support......Page 53
Barriers to the use of formal support......Page 55
Barriers to the use of informal support......Page 63
The interaction between formal and informal support......Page 69
Developing a broader understanding of the origins and interplay of support needs......Page 72
Support needs are mainstream but barriers are special: the principles of service response......Page 78
Conclusions......Page 81
Introduction......Page 84
Identifying ‘young carers’......Page 85
Rhetoric and reality: what do children actually do?......Page 88
‘Young carer’ service provision......Page 98
‘Young caring’ in context......Page 100
Conclusions......Page 115
Introduction......Page 118
Impairment, disability and the life course......Page 119
Changes in family composition......Page 124
Parenting over time......Page 131
Recent changes in parental impairment: onset and variability......Page 135
Looking to the future......Page 138
Conclusions......Page 140
Introduction......Page 142
Disability, relationships and parenting......Page 143
The social model, impairment and illness......Page 151
Conclusions......Page 159
Introduction......Page 162
Challenges for disability theory, policy and practice......Page 163
Towards more equal opportunities......Page 164
Children, parents and the meaning attached to domestic and ‘caring’ work......Page 165
Future directions......Page 166
Introduction......Page 168
Stage One......Page 169
Stage Two......Page 173
Recruitment......Page 174
Data management and analysis......Page 177
APPENDIX TWO: Comparisons with the ‘Looking After Children’ (LAC) community sample......Page 180
References......Page 186
Index......Page 200