Nursing Care of Children and Young People with Chronic Illness

Nursing Care of Children and Young People with Chronic Illness......Page 1
Contents......Page 7
Foreword......Page 13
Contributors......Page 14
Introduction......Page 17
Aim of the chapter......Page 21
Genetic knowledge......Page 22
The ethical, legal and social implications in the screening, testing and recording of genetic information......Page 23
Chromosomal abnormalities......Page 25
Chromosomal nomenclature......Page 27
Single gene (Mendelian) disorders......Page 28
Autosomal recessive inheritance......Page 29
Autosomal dominant inheritance......Page 30
X-linked recessive inheritance......Page 31
Inherited variations......Page 32
Antenatal period......Page 35
The neonatal period......Page 38
Post-neonatal period......Page 39
Adolescent period......Page 43
Conclusion......Page 44
Useful websites......Page 45
References......Page 46
Aim of the chapter......Page 49
Political influences......Page 50
Social influences......Page 52
New models of service delivery......Page 54
Modernising workforce......Page 56
Increasing patient expectations and engagement......Page 58
Locally based commissioning......Page 59
Staffing implications......Page 60
Staff education and competence......Page 61
Meeting parental needs......Page 62
Innovative practices-- new roles......Page 64
Telemedicine......Page 65
Key worker role......Page 66
Mental health issues......Page 67
Multi-agency working......Page 68
Multidisciplinary team (MDT) working......Page 69
Conclusion......Page 70
References......Page 71
Aim of the chapter......Page 75
Theories of grief, loss and change......Page 76
Type 1 diabetes......Page 81
Impact on parents......Page 82
Impact on the child/young person with chronic illness......Page 83
Impact on siblings......Page 86
Theories of stress and coping......Page 89
Coping strategies......Page 91
Normalisation......Page 93
Conclusion......Page 98
References......Page 99
Aim of the chapter......Page 104
Prevalence of eczema......Page 105
Nursing considerations......Page 106
Treatment of eczema with emollients......Page 107
Effects of the itch scratch cycle......Page 109
Family stress and coping......Page 110
Assessment and immediate intervention......Page 112
Current care management plan......Page 113
Pain assessment......Page 114
Bullying......Page 116
Spirituality......Page 119
Complementary and alternative medicine......Page 121
Health promotion......Page 122
Conclusion......Page 123
References......Page 124
Aim of the chapter......Page 127
Health promotion......Page 128
Empowerment......Page 131
Approaches to health promotion......Page 132
Parental smoking......Page 135
Obesity......Page 136
Steroids......Page 142
Restraint......Page 143
Conclusion......Page 146
References......Page 147
Aim of the chapter......Page 151
A definition of ethics......Page 152
Theory of consequentialism......Page 153
Act utilitarianism......Page 154
Rule utilitarianism......Page 155
Theory of deontology......Page 158
Ethical principles......Page 160
Principle of autonomy......Page 161
Ethical principle of beneficence......Page 164
Ethical principle of non-maleficence......Page 166
Ethical principle of justice......Page 168
A nursing ethic......Page 169
Definition of an ethical dilemma......Page 170
Ethical decision making......Page 171
A suggested model for ethics in practice/decision making......Page 172
Useful websites......Page 174
References......Page 175
Intended learning outcomes......Page 177
Complex health needs......Page 178
Transition to home care......Page 185
Continuing care policy......Page 188
Carers\' assessments......Page 189
Key worker role......Page 190
Community children\'s nursing services......Page 192
Provision of equipment for home care......Page 193
Respite care......Page 194
Education......Page 196
Conclusion......Page 197
Support groups......Page 198
References......Page 199
Intended learning outcomes......Page 203
Acute emergencies......Page 204
Aetiology......Page 205
Environmental factors......Page 206
Pathophysiology......Page 207
Presentation......Page 208
Prognosis......Page 209
Treatment......Page 210
Administration of chemotherapy......Page 212
Central venous access devices......Page 213
Sepsis......Page 216
Family focused care......Page 217
Multidisciplinary working across different organisations......Page 218
Conclusion......Page 219
References......Page 220
Aim of the chapter......Page 223
Adolescent knowledge......Page 224
Brief overview of adolescent development......Page 225
Understanding chronic illness from a young person\'s perspective......Page 226
Chronic renal failure......Page 227
Communicating with young people......Page 230
Communication issues for Thomas......Page 231
Peer groups......Page 233
The impact of chronic illness on growth and development......Page 234
Inconsistencies between physical and psychological development......Page 235
Body image and self-esteem......Page 236
Compliance and non-compliance......Page 237
Young people, chronic illness and school......Page 240
Bullying......Page 242
The hospitalised adolescent......Page 243
Issues for young people in hospital......Page 244
Specialised adolescent units......Page 245
Promoting excellence......Page 247
The role of the nurse......Page 248
Useful websites......Page 249
References......Page 250
Intended learning outcomes......Page 254
Overview of cystic fibrosis......Page 255
Management......Page 257
Transitional care......Page 258
Issues regarding transition for adolescents......Page 260
Managing a chronic illness......Page 262
Support and decision making......Page 263
The role of the nurse......Page 264
Promoting the paradigm shift......Page 267
The principles of successful transitional care......Page 268
Conclusion......Page 272
References......Page 273
Index......Page 276