Meddling with Mythology: AIDS and the Social Construction of Knowledge

Book Cover......Page 1
Half-Title......Page 2
Title......Page 3
Copyright......Page 4
Dedication......Page 5
Contents......Page 6
Contributors......Page 8
Read me first......Page 11
Acknowledgements......Page 18
BACKGROUND TO THIS VOLUME......Page 19
EXPLORING THE ‘SIGNIFICANT’ AND THE ‘TRIVIAL’......Page 21
MYTHOLOGY......Page 23
AIDS AND SOCIAL SCIENCE RESEARCH......Page 26
POWER......Page 28
NARRATIVE......Page 29
STRUCTURE OF THE BOOK......Page 30
I Power......Page 31
II Boundaries and identities......Page 32
IV Representation and agency......Page 33
Conclusion......Page 34
REFERENCES......Page 35
Part I Power......Page 37
INTRODUCTION......Page 38
AIDS/HIV NARRATIVES AND THE FLOW OF POWER......Page 39
REFLEXIVITY, CONVERSATIONS AND A DIALOGICAL IDEAL......Page 42
SILENCE AND RESEARCH......Page 46
SILENCE AND PWA/HIV......Page 50
REFERENCES......Page 52
INTRODUCTION......Page 55
THE BACKGROUND OF HIV-RELATED POLICY, PRACTICE AND RESEARCH......Page 56
STUDYING ETHNIC MINORITY DRUG USERS: POWER AND CULTURE......Page 58
HIV AND THE CONSTRUCTION OF ‘OTHERNESS’......Page 60
THE POLITICAL CONTEXT OF DRUG USE, HARM MINIMISATION AND HIV......Page 61
‘CULTURAL’ APPROPRIATENESS AND SERVICE RESPONSIVENESS......Page 64
CONCLUSION......Page 68
REFERENCES......Page 69
INTRODUCTION......Page 72
SETTING THE SCENE......Page 74
PSYCHOTHERAPY......Page 75
COUNSELLING......Page 76
COUNSELLING AND THERAPY IN AN HIV/AIDS ORGANISATION......Page 78
THE AUTHOR’S TALE......Page 79
RESPONDENTS’ VOICES......Page 81
PSYCHOTHERAPY AS DISCOURSE......Page 82
CONCLUSIONS......Page 84
REFERENCES......Page 87
Part II Boundaries and identities......Page 90
INTRODUCTION......Page 91
AND RELATIONSHIPS .........Page 93
THE RESEARCHER AS EX—NURSE AND CARE PROVIDER......Page 94
THE INTERACTION OF PUBLIC, PRIVATE AND PROFESSIONAL ROLES......Page 95
THE IMPACT OF THE RESEARCH ON THE RESPONDENTS: PUBLIC AND PRIVATE ACCOUNTS......Page 97
DISCLOSURE AND DISSEMINATION......Page 101
CONCLUSION......Page 103
REFERENCES......Page 104
INTRODUCTION......Page 107
RESEARCHING EMOTIONS......Page 108
DISPLAYING EMOTIONS......Page 110
THE AURA OF CONFIDENCE......Page 114
THE ROLE OF SUPPORT......Page 116
CONCLUSION......Page 117
REFERENCES......Page 119
INTRODUCTION......Page 121
‘YOU’RE ALL RIGHT YOU ARE’: CREDIBILTY, IDENTITY AND ACCESS......Page 122
NEGOTIATING BOUNDARIES......Page 124
THE RESEARCHER AS ACTIVE PARTICIPANT......Page 127
‘JUST GIVE US THE FACTS’: DIFFERENT VIEWS OF RESEARCH......Page 131
‘IT WILL BE INTERESTING TO SEE WHAT YOU MAKE OF ALL THIS’: WRITING UP......Page 134
CONCLUSION......Page 137
NOTES......Page 138
REFERENCES......Page 139
Part III  Narrative exchange......Page 142
INTRODUCTION: THE GIVING OF GIFTS......Page 143
ECONOMIC OR SOCIAL VALUES?......Page 146
THE COMPLEXITIES OF THE RESEARCH ENCOUNTER AND POSTMODERNIST IDEALS OF GIFT EXCHANGES......Page 150
THE WELFARE AND POLICY CONTEXT OF AIDS RESEARCH......Page 152
REFLEXIVITY, COLLABORATION AND POWER IN THE RESEARCH ENCOUNTER......Page 155
CONCLUSION......Page 157
REFERENCES......Page 159
INTRODUCTION......Page 162
A REASON FOR TELLING TALES......Page 163
TALES AT THE BOUNDARY......Page 165
THE MUTILATED BODY......Page 166
MANAGING AND HARNESSING POWERLESSNESS......Page 172
CONCLUSION......Page 176
REFERENCES......Page 177
MARGINALITY AS A STRUCTURAL POSITION......Page 178
NETWORKS: SERVICES FOR AND RESEARCH ON PEOPLE WITH HIV IN LOTHIAN......Page 181
NARRATIVES......Page 183
THE ‘GAZE’......Page 187
‘US’ AND ‘YOU’......Page 190
ACKNOWLEDGEMENTS......Page 194
REFERENCES......Page 195
Part IV  Representation and agency......Page 197
INTRODUCTION......Page 198
RECIPROCITY AND REPRESENTATION......Page 199
ATTRIBUTION AND INTERPRETATION......Page 203
CONSTRUCTING THE ‘OTHER'......Page 206
SELECTION AND PRESENTATION OF MATERIAL......Page 208
ENGAGING WITH THE ‘OTHER’......Page 210
CONCLUSION......Page 212
REFERENCES......Page 213
COLLECTING THE SAMPLE: ACCESS TO THE FIELD......Page 216
CONTACTING CARERS......Page 218
ETHICS......Page 219
ELICITING DATA......Page 221
INTERPRETATION AND REPRESENTATION......Page 224
RESPECTING CONFIDENTIALITY: PRESENTATION OF THE DATA......Page 227
CONCLUSION......Page 230
NOTE......Page 231
REFERENCES......Page 232
BookmarkTitle:......Page 233
POLICY-MAKING, EVALUATION AND THE CONTRACTING CULTURE: THE HIV/AIDS AND DRUG EVALUATION INDUSTRY......Page 234
EVALUATION OPERATIONALISED: ASSUMPTIONS AND PRACTICALITIES......Page 236
NEGOTIATING EVALUATION......Page 240
RULES OF EVALUATION: FORMAL AND INFORMAL INFORMATION EXCHANGE......Page 242
LOOKING AND ACTING INFORMED......Page 245
CONCLUDING REMARKS: PUTTING ‘VALUE’ BACK IN ‘EVALUATION’......Page 246
REFERENCES......Page 247
Part V  A tribute to Phil Strong and an overview......Page 249
Introduction to Chapter 14......Page 250
NOTES......Page 255
REFERENCES......Page 256
INTRODUCTION......Page 257
THE PESTILENTIAL DRAMA......Page 258
BIOLOGICAL REDUCTIONISM AND REFLEXIVITY IN THE PUBLIC SPHERE......Page 259
TWIN WORLDS, PARALLEL APOCALYPSES......Page 264
NOTES......Page 267
REFERENCES......Page 269
THE RESEARCH BARGAIN, REFLEXIVITY AND THE SOCIOLOGICAL GAZE......Page 272
THE STORIES RESEARCHERS TELL......Page 276
REFLEXIVITY AND THE ELUSIVE: CHASING THE LAST VISIBLE DOG......Page 278
REFERENCES......Page 280
Name index......Page 281
Subject index......Page 287