Global Perspectives on Disability Activism and Advocacy: Our Way

Cover
Half Title
Series Page
Title Page
Copyright Page
Dedication
Table of Contents
List of contributors
Acknowledgements
Chapter 1 Introduction: Doing it our way: Disability, activism and advocacy
	A personal reflection as editors
	Activist wisdom and the possibility of social change
	Book themes and structure
	References
Part I Remembering and remembrance
	Chapter 2 ‘We’re being treated as second-class citizens’: Community, family and learning disability activists campaigning for dignity in death
		Background
		The Calderstones campaigning story
		The issue: ‘second-class citizens’
		Campaigning self-advocates
		Reflections
		Conclusion
		Acknowledgements
		Note
		References
	Chapter 3 ‘Madhouse’: Performance artists with learning disabilities sharing the history of institutions
		Who’s who and how we came together
		Understanding your history to help shape the future
		Conclusion
		References
	Chapter 4 The importance of disabled people being seen on our screens
		References
	Chapter 5 Advocacy from within
		Introduction
		Non-governmental human rights advocacy
		Human rights advocacy within the system
		Conclusion
		Appendix
		Cases cited
		Reference
Part II Movement organizations and leadership
	Chapter 6 Action makes a difference: Creating inclusive spaces through advocacy work in Sāmoa
		Laying the foundations of advocacy
		Thinking about self-advocacy
		Researching ‘advocacy work’
		Nuanua O Le Alofa
		Conclusion
		Note
		References
	Chapter 7 Kamalawathie: Gender, disability and leadership in Sri Lanka
		Leadership in disability movements
		Gendered-disability movements in Sri Lanka: a matter of survival
		Presenting the life stories of Kamala: gendered-disability leadership
		Conclusion
		References
	Chapter 8 Research, advocacy and activism: A necessary interaction?
		What is inclusive research?
		No longer researching about us without us: developing inclusive research in Ireland 2006–2008
		The Clare Inclusive Research Group and the Inclusive Research Network
		To what extent has inclusive research in Ireland reflected the principles of inclusive research?
		Conclusion
		References
	Chapter 9 Peer education: A platform for sexuality rights advocacy for women with intellectual disabilities
		Introduction
		Background
		Peer education
		The personal is political: peer educators and spokespeople
		Journeys to advocacy and activism through SL&RR
		Conclusion
		Acknowledgements
		References
Part III Activism across multiple identities
	Chapter 10 Our lives, our story: The journey of the voiceless towards advocacy in Nepal
		Introduction
		Framing issues and concerns on the ground
		NIDA and NIDWAN, recognition and affiliation
		Self-advocacy and collective action
		Stories as a power for collective voices
		Cross-movement collaboration: bridging the gaps and building relationships
		Linking with global advocacy
		Documentation and normative frameworks
		Challenges and opportunities
		Conclusion
		Note
		References
	Chapter 11 Sex trafficking, activism and disability
		Background
		The nature and scope of trafficking
		Activist debates about sex trafficking
		Trafficking makes people disabled
		Disability, sex rights and sex trafficking
		Conclusion
		References
	Chapter 12 The onset of austerity in the United Kingdom and start of a disability activism
		Intersectional tensions
		International reporting on austerity
		Feminism and dis/ablism
		Conclusion/Brexit
		References
	Chapter 13 Queer-crip.blog: A virtual ethnographic comparison of social media movement-building techniques used by queer and disabled activists
		Title, definitions and methodology
		Internet social movement analysis and identity politics
		The blog
		The flash blog
		Poem/performance blog
		Webcomics
		Memes
		Postlude
		Note
		References
Part IV Agitating the state
	Chapter 14 Disability masked avengers: The Bolshy Divas
		Theories of disability media activism
		The Bolshy Divas
		The Uncounted: intersectionality
		Established hierarchies of attention
		Conclusion
		Acknowledgements
		References
	Chapter 15 Advocacy in Jordan: A paradigm shift from the medical model to the rights-based approach
		Introduction
		Enhancing the civil movement and the emergence of advocacy initiatives
		The civil society report and its role in effecting change
		Legislative reform
		The future for people with disabilities: the permanent need for advocacy
		References
	Chapter 16 Transforming disability law and policy in Peru: The role of civil society
		Introduction
		The context
		The Peruvian disability movement
		The new General Law on Persons with Disabilities
		Other legal and policy outcomes
		Success factors for disability advocacy and social change
		Conclusion
		Notes
		References
	Chapter 17 The fight to be steadfast: Bolivian disability activists
		Background
		Understandings of disability in Bolivia
		The Bolivian context
		La Marcha: the fight of Bolivian disability activists
		Embracing dignity and social citizenship
		Results of disability activism
		Conclusion
		Note
		References
Part V Working transnationally
	Chapter 18 Advocating for independent living in the European Union: Where there’s money, there’s a way?
		Introduction
		The importance of definitions
		Legal basis for advocating for independent living in the EU
		The rules governing the use of ESI Funds
		The (wasted) potential of ESI Funds to facilitate access to independent living
		Advocating for the use of ESI Funds for independent living
		Conclusions
		Notes
		References
	Chapter 19 Towards an Afrocentric disability activism: Opportunities and challenges of transnationalizing disability advocacy in Africa
		Introduction
		Western foundations of disability activism
		Development of disability activism in Africa
		African existential factors challenging the Western-centric disability paradigm
		Towards an Afrocentric paradigm of disability activism
		Conclusion
		Notes
		References
	Chapter 20 Troubling activisms: Canada and transnational disability activism
		What is transnational activism?
		What are disability justice and rights?
		How is intersectionality used?
		Historical context
		Disability rights and Canadian transnational disability activism
		Disability justice and Canadian transnational disability activism
		Intersectionality and Canadian transnational disability activism
		Conclusions
		Acknowledgements
		Notes
		References
	Chapter 21 When academia meets activism: The place of research in struggles for disability rights
		Introduction
		Bourdieu’s theory of field
		The critical, emancipatory paradigm in Disability Studies
		Implementing Disability Studies in Portugal: success against all odds
		Acknowledgement
		References
	Conclusion
		Disability advocacy and activism
		Moving forward
		References
Index