Children Caring for Parents with HIV and AIDS: Global Issues and Policy Responses

Children caring for parents with HIV and AIDS......Page 2
Contents......Page 6
List of figures, tables and boxes......Page 11
Preface......Page 17
1. Children’s and young people’s caring responsibilities within the family......Page 20
Global constructions of childhood and youth......Page 21
Gender, social reproduction and informal care......Page 24
The ‘welfare mix’: families, carers and the state......Page 28
Reciprocity and an ethic of care......Page 30
Children and young people with caring responsibilities......Page 33
A continuum of children’s and young people’s caring responsibilities......Page 40
Conclusion......Page 55
The global HIV/AIDS epidemic......Page 58
Orphanhood and care......Page 64
Children’s emotional well-being and bereavement......Page 66
The household economy and children’s education in the global South......Page 69
Poverty, social exclusion and immigration in the global North......Page 70
Secrets and disclosure within families......Page 73
Stigma and discrimination......Page 75
Caring relationships in households affected by HIV/AIDS......Page 77
Policy responses to the global HIV/AIDS epidemic......Page 81
Conclusion......Page 84
Research with children and the ‘new social studies of childhood’......Page 86
Reflexivity, power and ethics......Page 88
The research process......Page 89
Conclusion......Page 106
Embodiment, illness and disability......Page 110
Discovering their HIV status......Page 112
Negotiating changed family and intimate relationships......Page 115
Embodied experiences of living with HIV......Page 120
Poverty and impacts on the household economy......Page 129
Stigma and discrimination within the family and community......Page 135
Deciding whom to tell: secrets and disclosure within the family......Page 143
Conclusion......Page 146
Young people’s everyday caring responsibilities......Page 148
Young people’s household chores......Page 150
Young people’s healthcare responsibilities......Page 153
Young people’s responsibilities for personal care......Page 159
Young people’s childcare responsibilities......Page 161
Young people’s income-generation activities......Page 162
Emotional and practical support......Page 164
Conclusion......Page 167
Resilience and impacts for children and young people at the individual level......Page 170
Resilience and impacts within the family......Page 184
Conclusion......Page 191
Resilience and impacts within the school environment......Page 194
Resilience and impacts within the wider community......Page 206
Conclusion......Page 218
Services and support for families affected by HI V/AIDS......Page 220
Practices and approaches that promote resilience and protective factors for children and families......Page 224
Conclusion......Page 244
Individual, relational and structural processes shaping young people’s involvement in care work......Page 246
Global processes and policy environment......Page 249
National policy context and infrastructure......Page 252
Sociocultural beliefs and values......Page 261
Factors influencing whether young people take on caring responsibilities at the level of the community......Page 266
Factors influencing whether young people take on caring responsibilities at the level of the household......Page 270
Factors influencing whether young people take on caring responsibilities at the level of individual children......Page 277
Conclusion......Page 285
Needs and requirements for support......Page 288
Developing services and support for young people caring for parents with HIV......Page 295
Barriers to the development of services and support......Page 305
Global and local strategies and responses......Page 312
Conclusion......Page 325
Bibliography......Page 328
Index......Page 356