Cancer on the Margins: Method and Meaning in Participatory Research

Contents
List of Tables
Foreword
Acknowledgments
Introduction
PART ONE. Research Design in Participatory Approaches
1. Getting Started in Research with Marginalized Populations
2. Ethical Considerations in Participatory Breast Cancer Research
3. Community-Building versus Career- Building Research: The Challenges, Risks, and Responsibilities of Conducting Research with Aboriginal and Native American Communities
PART TWO. Approaches in Data Analysis
4. Listening for Echoes: How Social Location Matters in Women’s Experiences of Cancer Care
5. ‘Nurses Can’t Do It. They Have a Hundred and Ten Patients’: Health Professionals’ Working Conditions and the Experiences of Informal Caregivers
PART THREE. The Politics of Representation
6. The Stories We Tell: Processes and Politics of Representation
7. If Cancer Has No Colour, What Can I Say? Negotiating Racism and Analytic Authority
PART FOUR. Reflections on Research: From Different Standpoints
8. Reflections from an Intersection: Identity, History, Cancer, and Social Change
9. Journeying towards Authenticity: Reflections and Lessons from Our Pathways
10. Survivor, Activist, Advocate: Reflecting on Advisory Committee Roles
PART FIVE. Implications and Impacts of Knowledge
11. Making a Difference with Research
12. Moving Knowledge: The Possibilities and Complexities of Qualitative and Participatory Research
Recommended Sources For Further Reading
Glossary of Terms
Contributors
Index