A Guide to Hypertrophic Cardiomyopathy: For Patients, Their Families, and Interested Physicians

A Guide to Hypertrophic Cardiomyopathy: For Patients, Their Families, and Interested Physicians......Page 5
Copyright......Page 6
Contents......Page 7
Acknowledgments and Dedications......Page 9
Foreword......Page 10
Introduction: Tips for using this book......Page 12
What is hypertrophic cardiomyopathy (HCM)......Page 13
Historical perspective and names......Page 15
How common is HCM?......Page 17
What is the cause of HCM?......Page 20
The normal heart......Page 26
The heart in HCM......Page 28
LAMP2 (Danon disease)......Page 32
Heart function in HCM......Page 33
Left ventricular outflow obstruction......Page 34
When does HCM develop?......Page 37
Gender and race......Page 39
What are the symptoms of HCM?......Page 40
Fatigue......Page 41
Lightheadedness, near-fainting, and fainting......Page 42
Echocardiogram......Page 43
Cardiovascular magnetic resonance imaging (MRI or CMR)......Page 45
Genetic testing......Page 48
Exercise testing......Page 50
Radionuclide studies......Page 51
General outlook for patients with HCM......Page 52
Ventricular tachycardia/ventricular fibrillation......Page 55
Atrial fibrillation and stroke......Page 56
The problem of sudden death......Page 57
Endocarditis......Page 63
Advanced heart failure (“end-stage” phase)......Page 64
Special considerations: athletes and sports activities......Page 65
Medical management......Page 67
Beta-blockers......Page 68
Disopyramide (Norpace®)......Page 69
Diuretics......Page 70
Antibiotics......Page 71
Implantable defibrillators......Page 72
Special considerations for implantable defibrillators......Page 77
Surgery......Page 80
Alcohol septal ablation (nonsurgical myectomy)......Page 84
Pacemakers......Page 86
Heart transplantation and end-stage HCM......Page 87
Gene therapy and stem cells......Page 90
Automated external defibrillators (AEDs)......Page 91
HCM as a chronic disease: Is a cure available?......Page 92
Are you newly diagnosed?......Page 94
Adapting psychologically to HCM......Page 96
Family screening......Page 99
What about having children? Pregnancy and delivery......Page 101
Routine medical care......Page 103
Exercise......Page 104
Flu vaccination......Page 106
Other restrictions......Page 107
Community screening for HCM......Page 108
Community outreach......Page 109
Driving......Page 110
Traveling......Page 111
Military service......Page 112
Social security benefits......Page 113
Health insurance......Page 115
Students......Page 117
HCM Centers......Page 118
Support and advocacy groups (HCMA)......Page 119
What research is being conducted?......Page 122
The 36 most frequently asked questions about HCM that are addressed to the HCMA by patients, caregivers, and family members......Page 124
Glossary......Page 135
Further reading......Page 142
Membership application......Page 147
Index......Page 149
Uploaded by [StormRG]......Page 152